Showing posts with label transparency. Show all posts
Showing posts with label transparency. Show all posts

23 October 2012

CAP-IDD ... this is NOT NC Innovations

From Mary K. Short:


The links to the announcements and guidance are below.  The changes from CAP-MR/DD to CAP-IDD are approved by CMS on 10/1/2012 BUT are not implemented until 1/1/2013.  If you are in an LME that is supposed to convert to an MCO before or on 1/1/2013 THIS DOES NOT APPLY TO YOU (or if you are already on the NC Innovations waiver) because you should be working on the transition to the NC Innovations waiver for your LME/MCO "go live" date prior to or on 1/1/2013.  The Special Medicaid Bulletin is specific about timelines and who is and who is not impacted.
Additionally, this is part of what Doug Sea sent out to providers/case managers.  I know he works with DRNC (Disability Rights North Carolina www.disabilityrightsnc.org) and you should probably contact them if you have questions.  If you are in Legal Services of the Southern Piedmont area (Mecklenburg & surrounding), then contact LSSP at www.lssp.org.
The instructions do not include the right to request continuation of current services as a reasonable accommodation under the ADA. Nor do the instructions provide for the right to a notice with appeal rights if such a request is made and denied. It will be up to advocates and providers to let families know they have the right to submit such a plan and to appeal to OAH if denied if they are at serious risk of institutionalization without continuation of their current services. Please make families aware of this.  
Essentially the same issue will occur for families transitioning to the Innovations waiver on January 1 .  Those 36 counties are also listed in this bulletin.
Here are some other possible specific issues to look for as CAP-DD families transition to the new CAP-IDD waiver (for a short time) and to the Innovations waiver:
A.      if LME doesn’t have adequate provider network, can family continue to be paid to provide home support services?
B.      If rate paid to provider is changing (eg no more enhanced personal care services or enhanced respite) and new rate is inadequate to attract qualified provider for this recipient, can recipient appeal rate reduction/loss of enhanced service?
C.      Does the requirement that  Intensive In home support have a fading plan and the 6 month limit for intensive night services violate the ADA or EPSDT?
D.      Does the restriction on services during school hours violate EPSDT if the child requests personal care (not hab serv) in excess of that limit?
E.       Does child recipient have right to case management in addition to care coordination under epsdt if medically necessary in that case because the LME staff are not adequately trained or don’t do medically necessary work the current case manager has been doing?
F.       Does the LME violate due process by “crosswalking” to new services without explaining right to request continued current service and to appeal if denied?
Mary K. Short
828-632-5888 or 704-451-4144 (cell)
Special Medicaid Bulletin:
http://www.ncdhhs.gov/dma/  (SCROLL down, it's the first bullet point on the left.)
OR direct link to the Bulletin:
CLINICAL POLICY 8M:
(Clinical Policy 8M ... this is the IDD 8M.  I do not have an answer for how it got approved and posted without an additional comment period!)

31 August 2012

What's New in August

August 2012 news, events, and updates.


09 August 2012

From The Arc NC: Lessons from the Western Highlands Network overruns

From The Arc of North Carolina

Lessons from the Western Highlands Network overruns

[ view original posting ]

The cost overruns at Western Highlands Network (WHN), the first LME to become an MCO under a new law, are a serious issue. The solution to these overruns that the state and WHN has come up with is clear: further service cuts. Hopefully, these overruns are just a bump in the road and not the light of an oncoming train, indicative of a system-wide underestimation of managed care cost. Most likely it will be somewhere in the middle.

We can only hope that people with disabilities will not be harmed further by these overruns than they already have been by the shift to managed care. The Arc hopes WHN survives these problems and succeeds for the sake of the individuals they are in the business of supporting.

Regardless of the reasons for the problem, the State, meaning both the Administration and the Legislature, should be paying close attention. Though we do not yet know the specifics that led to these overruns, several things should be perfectly clear:
  1. We need a real examination of the process. Regardless of why, no MCO should have such significant funding issues six months into operation. Some are understandably questioning the leadership of former CEO Arthor Carder, but it’s hard to believe anyone would question his commitment to the people WHN served, or the commitment of WHN’s staff. The fact that this MCO was allowed to go live without the tools to succeed is not only a mark on WHN, but more importantly a significant mark on the DHHS processes that deemed them ready.
  2. We should not only examine the process that led to these overruns, but the 1915(b)(c) waiver model as a whole. It is no secret that The Arc does not believe this model is appropriate for people with IDD. The issues with WHN should cause public officials to question the model as well. As WHN looks for places to cut Medicaid rates, it becomes clear that the system prevents them from even considering state operated facilities [state institutions] for reductions comparable to community services. Managed Care was sold to legislators, and the public, on the assumption of MCOs’ ability to effectively manage all public resources. Clearly, that was not true then, nor is it now. This disconnect makes the state’s difficult transition to a new model of care even more difficult. If the 1915(b)(c) managed care model works for community-based services it should also work for state-managed facilities. This issue is just one of many model design questions that must be questioned.
  3. State officials told the WHN Board that they should expect no additional state funds to make up for overruns. This begs the question: is the stated goal of “better access to services” just spin? When rate reductions, utilization reductions, and Medicaid paybacks are the primary tools used to eliminate deficits, it is difficult to take seriously that better access is a real goal. Better service access would more likely be achieved if the state were willing to adjust the capitation rate or infuse some money while WHN becomes better prepared to “manage.”

Though not enough details have been released yet to determine the specifics of the WHN overruns, we do know:
  1. The only way “savings” will be achieved through this managed care model is through cuts. That should be clear as we review the differences in what WHN was paid and what they have said they needed to provide services. We know that Medicaid cost must be controlled but an honest discussion of how managed care achieves this is critical if people will have faith in this system.
  2. The way “at risk” is used in this model is insulting to families, consumers and the people who provide the supports for them. Public MCO’s are not really “at risk” entities. They have raised no capital to fund their organizations; they receive generous administrative allocations separate from services funds, and have the ability to cut rates and services to consumers if they exceed budgets. Providers of services are the ones really at risk. With subjective decision making, constant rate reductions, no guaranteed “administrative” funds or excise payments to fund a MCO’s “risk” reserves, many providers will likely go out of business. Most importantly, people with disabilities and their families are the most at risk…at risk for another failed effort at reform jeopardizing their ability to live successful lives in the community.

06 August 2012

WRAL re NC MH Reform & Parent Info.

WRAL report re Managed Care and IDD, etc.
1 message


MaryKShort@aol.com <MaryKShort@aol.com>Sun, Aug 5, 2012 at 11:15 AM
To: MaryKShort@aol.com

FYI ... very well written and researched article by Mark Binker at WRAL.com.  I can see that there are a lot of good talking points to use when you contact your elected representatives to express your concerns or your experiences. 


In the article, a Ms. Laurie Haley is quoted:  Laurie Haley has seen ups and downs as North Carolina has slogged through mental health reform efforts over the past decade. For a three-year period from 2005 through 2008, she said, reform seemed to have worked for her daughter, Alissa. Other times, dealing with local and state mental health bureaucrats was more fraught.

That period of time covers the pre-Home Supports service definitions.  I happen to agree totally with her EXCEPT for the fact that it was at the end of 2007 and into early 2008 when the state first tried to implement the 40-hour limit!  I don't know if she was impacted by that at the time or if she even knows it is part of the Innovations waiver.  I have written the reporter to ask.

Mary K. Short
828-632-5888 or 704-451-4144 (cell)


Posted: 7:09 p.m. Friday (August 3, 2012) Updated: 12:11 a.m. yesterday

Patients, advocates wary as NC again reforms mental health system

By MARK BINKER, WRAL.com Multimedia Reporter


Raleigh, N.C. — North Carolina is in the midst of an effort to remake the state's public safety net for those with mental health, substance abuse and developmental disabilities.

Lawmakers, administrators and taxpayers want to see if the change to a "managed care" model can really save millions of dollars and avoid the over-spending debacles that marked the first system remake a decade ago.

At stake is how the North Carolina manages more than $2.4 billion in state and federal mental health dollars that flow through local mental health agencies, and how individuals with mental illness will live their lives every day.

"All I want to do is keep my daughter at home," said Laurie Haley.

For her, reforms success or failure will be measured by how it affects her daughter, Alissa. The 27-year-old woman has severe developmental disabilities and also suffers from seizures. Alissa needs help dressing, eating and taking care of other needs. Those who help her need to be able to administer medicine and prepared to act in case a seizure makes her fall in the shower or comes on her in public.

Haley says that she has, for now, ensured that the transition to managed care won't mean fewer services for her daughter. But she said other families making the switch are still encountering problems.

"What I'm hearing is that they're still trying to reduce services for people," Haley said.

That small-scale skepticism of the new system was amplified this summer when a blistering report said that one of the first local mental health authorities given permission to make the transition was not ready for the switch to managed care.

State and local mental health administrators say that one experience should not color the entire transition effort and that the system is on the road to improvement. Advocates, some who work providing services to clients and even some lawmakers say the process may be moving too fast. They worry that counties such as Wake and Durham, which have just begun the move toward managed care, could encounter the same mistakes and problems seen elsewhere.

...

[ There's much more... Read the Full Story on WRAL.com ]

And while statewide success will be measured in millions of dollars, Haley and others like her will measure it in terms of what it means for their loved ones.

"My daughter is not a disability, she's a human being with a disability," Haley said. "If I have the right to live at home and you have the right to live at home, she should too."

----------- more from Mary Short...

EXTRA:  Mercer Report link
2ND EXTRA:  Federal Report link and quote from that report

C. Health, Safety and Quality

Abuse, neglect, exploitation, the use of mechanical and chemical restraints, unexplained injuries and denial of services are far too prevalent in our current long-term system of services. CMS has made significant strides in holding states accountable for addressing health and safety issues in the 1915(c) Medicaid Home and Community Based Waiver program; but requirements governing program design, state monitoring and reporting to CMS have not been mandated for managed care programs approved under Section 1115 demonstration waivers or under the dual eligible pilot demonstrations.
3rd EXTRA:  Other news reports from Raleigh sources regarding other budget cuts and budget overruns

http://projects.newsobserver.com/under_the_dome/mental_health_office_needs_lots_of_work_consultant_says#storylink=cpy
Submitted  by lbonner on 2012-07-26 14:37
Under the Dome | mental health | N.C.  Department of Health and
Human Services | Western Highlands  Network

Last week, we wrote about a local mental health office that  covers
western North Carolina counties losing $3 million since switching  to
managed care in January.

A consultant's report issued this week  describes problems at Western
Highlands Network, one of the first local  mental heath offices to
convert to a managed care system.

Among other  things, the report says that the information Western
Highlands leaders  receive about services, use and costs is inadequate,
and that it is not  keeping good track of Medicaid claims.

The report goes on for nine pages.  In short, it says Western Highlands
needs lots of improvements, and the  consultant recommends close
monitoring by the state Department of Health and  Human Services.

Under managed care, the local mental health office gets a  set amount
of money to treat mentally ill patients who rely on Medicaid or  state
funds.

Western Highlands Network became a managed care  organization in
January. By next January, managed care organizations  for
government-paid mental health services will cover the entire  state.
And ... news article re WHN & Mercer Report is in it and easy to read!

27 July 2012

I/DD Budget Cuts May Be Worse than Expected

From The Arc of North Carolina

I/DD Budget Cuts May Be Worse than Expected

[ original post here ]

In what is being described as a mistake, a budget transfer intended to move Guardianship funding from one division to another has created an additional 4.3 million dollar cut primarily to community services for people with I/DD.

Department officials and legislative leadership agreed to transfer $4.3 million in the Social Services block grant from the Division of MHDDSA to the Division of Social Services. The money was to be used by either Corporate Guardians or local DSS to provide guardianship services. The transfer was needed because, as LMEs transfer to MCOs, they will no longer be allowed to be guardian for individuals in their catchment areas.

Somehow the transfer of funding happened twice causing an additional cut of 4.3 million dollars to MHDDSA community services funding. Department officials tell us that this was never the intent and discussions with legislative staff point to a mistake, although we have no official confirmation. Unfortunately, the reduction has been included in the allocations to LME/MCO’s and several are taking immediate action to cut services. We are hearing reports that some programs face 20% reductions effective August 1st.

The Arc is calling on the DHHS to ask LME/MCO’s to hold off on implementing this reduction until all possibilities of fixing the problem have been exhausted. This reduction to an already fragile system is unwarranted and will harm individuals with I/DD.

The Arc is also concerned about how LME/MCO’s are implementing the one time $20 million reduction to community services. This cut is an extension of a reduction taken last year. While LME/MCO’s were encouraged to use fund balances to offset this reduction last year, we do not believe most did so. We are seeing a disturbing trend that has LME/ MCO’s passing on this entire cut to people with disabilities and their families. We believe a more responsive approach would be for LME/MCO’s to use fund balances to offset this reduction since it is a non-recurring cut. It does not seem appropriate for the Management Entities, who are charged with ensuring individuals have services, to use fund balances to become MCOs while the people they are created to serve lose services.

We will be tracking these reductions and will continue to encourage the State and LME/MCO’s to find alternatives to wholesale reductions for people with disabilities and their families.

Once we determine what steps the DHHS plans on taking, we will issue an action alert describing what actions people with disabilities and their families should take, if any, to influence these changes.

Related : 

26 July 2012

First LME to become MCO Facing Budget Overruns

From The Arc of North Carolina

First LME to become MCO Facing Budget Overruns

[ view original article ]

Western Highlands Network (WHN), the Managed Care Organization (MCO) that provides state funded services to people with intellectual and developmental disabilities (I/DD) in several western counties, recently reported that they are running a monthly defecit of $500,000 since they became a managed care organization in January 2012. WHN officials indicate they feel the State’s original capitation (reimbursemnt) rate was insufficient to cover the Medicaid cost of their program.

When questioned by members of the Disability Waiver Advisory Committee on July 24th, State officials responded that the budget deficit had been uncovered in a routine monitoring visit and that they would be attending the upcoming WHN board meeting. They offered no further explanation.

Apparently the State, along with the Mercer consulting firm, reviewed WHN in mid -July to determine what was causing the cost overruns. At this time, we do not have the results of this review, but we will report as we find more details.

The revelation of these cost overruns is concerning on many levels. Most importantly, we are concerned WHN will be forced to make significant cuts to services in an area that already has significant numbers of people with I/DD waiting for services. To correct this deficit, WHN plans to evaluate rates paid to providers and the amount of service provided to consumers. If this problem results in service reductions, it will be further evidence that Managed Care “savings” are really just another name for “cuts.”

If the capitation rate is too low, as WHN claims, and the state adjust it upwards, it will erode the “savings” North Carolina hopes to gain from the implementation of the Managed Care Waiver. Such a development would call into question why we would make such a massive change for little gain.

Another concern is how the state deems a MCO ready to proceed. According to state officials, all pending MCOs pass rigorous tests to assure that they are ready to go “live” as a managed care entity. The State contracts with Mercer to engage in this process, as do state officials charged with implementing the Waiver. If WHN was really ready to go “live” in January, it is hard to believe they could be losing money at such a pace.

The Arc believes the WHN staff and DHHS staff are sincerely attempting to find solutions to this serious problem. We hope that this issue is only temporary and that services will not be disrupted to the people this complicated system is intended to serve. However, we do believe this issue should prompt the DHHS and the General Assembly to truly examine the model and pace of this implementation. In an at risk Managed Care system, the only people truly at risk are the people it is intended to serve.

30 June 2012

What's New in June?

June 2012 events and updates.

25 June 2012

ECBH Finance Called to Question in news

Mary beat me to it... [download the 3 news articles here]


Mary K. Short is a strong and active advocate and the parent caregiver of an adult DD recipient with profound needs. She fights tirelessly for the rights of her daughter, Katie and other special families, as well as a great deal of time keeping folks informed! Posted with Mary's permission.

Mary and her daughter live in NC House District 88 and Senate District 42. Her daughter is being served by Smoky Mountain LME.


MaryKShort@aol.com <MaryKShort@aol.com>Mon, Jun 25, 2012 at 1:09 PM

To: jjennings@alexandercountync.gov, rmayberry@alexandercountync.gov, jmoose@alexandercountync.gov, drobertson@alexandercountync.gov, lyoder@alexandercountync.gov
Cc: MaryKShort@aol.com


Dear Commissioners:  I have appeared before you and I have tried to tell you about my concerns regarding this change from a statewide CAP-MR/DD waiver to an LME/MCO run NC Innovations waiver.  I have expressed my concerns about this change to an "at-risk insurance company."  I am hopeful you will take the time to read this series of newspaper articles regarding ECBH (East Carolina Behavioral Health).

I am asking that you contact me by email to tell me that this is NOT also true of what is happening at SMC (Smoky Mountain Center) which is due to "go live" with the change on July 1st. 

Mary K. Short
828-632-5888 or 704-451-4144 (cell)



In a message dated 6/25/2012 10:31:57 A.M. Eastern Daylight Time, 

Begin forwarded message:
From: "Crystal J. De la Cruz "
Date: June 25, 2012 10:14:44 EDT
To: undisclosed-recipients:;
Subject: NC Medicaid Waiver - financial mysteries with ECBH
Dear US Government Officials, members of the NC General Assembly, DHHS representatives, and fellow concerned parents and NC Citizens,

Please find attached 3 news articles from The Daily Advantage, a small paper in the eastern part of the state which highlights some very frightening issues surrounding the Medicaid Waiver and budgetary concerns expressed by Camden Co. Commissioner Mike McClain, also an accountant and ECBH board member.

Also attached, my recent open letter and outline (with supporting documents) addressing related concerns, in the event you have not had an opportunity to review.


Kind regards,
-- 
Crystal J. De la Cruz - Hopper
Mother, Advocate & Concerned Citizen

When we allow the value of human life to be determined by capital gain, when we sacrifice the well-being of the most innocent among us to compensate our own shortcomings, and when we judge the worth of our most fragile, not by their character nor intention, but rather their abilities – We Are in Crisis.


"The moral test of government is how it treats those who are in the dawn of life . . . the children; those who are in the twilight of life . . . the elderly; and those who are in the shadow of life . . . the sick . . . the needy . . . and the disabled."
          --Hubert H. Humphrey

From: ncadvocacy@yahoogroups.com
Reply-to: notify-dg-ncadvocacy@yahoogroups.com
To: ncadvocacy@yahoogroups.com
Sent: 6/25/2012 6:15:48 A.M. Eastern Daylight Time
Subj: [ncadvocacy] Digest Number 2039
The Daily Advance ECBH 'lost' $11.4 Million - East Carolina Behavior
    Posted by:
    Date: Sun Jun 24, 2012 1:05 pm ((PDT))

_Click  here: The Daily Advance_
(http://www.dailyadvance.com/news/mclain-ecbh-8216lost8217-114m-1113601)

NC Advocacy: As you have to subscribe to see the article -  I've pasted it
below.


The Daily Advance
June 24,  2012
McLain: ECBH ‘lost’ $11.4M

“This is basically Albemarle Mental  Health on steroids.”

-quote by Mike McLain Camden  commissioner

By Reggie  Ponder

East Carolina Behavioral Health — the  Greenville-based agency that
oversees mental health services in the region — has  lost $11.4 million in the
current fiscal year and is losing about $1 million a  month, an ECBH board
member charged last week.

Camden County Commissioner Mike  McLain, who sits on ECBH’s Area Board of
Commissioners, said the current  management at ECBH is 10 times worse than
Albemarle Mental Health Center’s ever  was.
“This is basically Albemarle Mental  Health on steroids,” McLain said,
referring to the now-defunct organization that  was shuttered in 2009-10 in the
wake of a state audit that uncovered glaring  mismanagement.

But ECBH Director Leza Wainwright  categorically denies that ECBH is losing
money.  “We are not losing money,” Wainwright  said Friday when asked
about McLain’s concerns.

McLain, an accountant and an  instructor in accounting at Hampton
University in Virginia, said he noticed  while reviewing financial statements
recently that revenues do not match  expenses.

McLain said when he asked about the  discrepancy, which ECBH records show
amounted to some $11.4 million for the  2011-12 fiscal year as of May 31, he
was told not to worry about the  figures.

McLain said he was told that ECBH  expected to lose $6 million when it
launched its Medicaid waiver program but the  actual loss has been more than $11
million. ECBH has managed Medicaid funding  for programs serving people
with developmental disabilities under a waiver  system since April.

Wainwright and ECBH Assistant  Director Joy Futrell insist the loss exists
only on paper and is the result of  board-approved fund balance transfers
coupled with an especially conservative  way of accounting for potential
liabilities. They say the accounting method was  recommended by a consultant as
the safest way to begin ECBH’s foray into the  Medicaid waiver field.

A financial report for May presented  to ECBH’s Finance Committee shows
expenses of $87 million as of May 31 but  revenues of only $75.6 million — a
shortfall of $11.4  million.

While Wainwright acknowledged that  while the report shows a net loss of
$11.4 million, those figures reflect  one-time transfers from fund balance
that were authorized by the board, she  said.

ECBH transferred $6.7 million out of  fund balance into a retiree health
insurance trust account and $4.5 million for  the Medicaid waiver start-up.

She said the reality is that ECBH is  not losing money but is between $1
million and $1.5 million to the  good.

Futrell explained that once ECBH gets  further along with the Medicard
waiver program, staff will be able to estimate  Medicaid service liability more
precisely.

“Typically and in the future, ECBH  will estimate outstanding Medicaid
service liability utilizing data which  considers providers’ billing history,
specifically considering the average  number of days it takes for providers to
bill and get paid,”

Futrell said in an e-mail response to  The Daily Advance. “Due to the
waiver starting up in April, there was no history  to estimate the outstanding
Medicaid liability and there was no authorization  data to utilize, so the
recommendation was made to use the most conservative  approach in estimating
the Medicaid liability to be 100 percent of what was not  spent for Medicaid
services based on the budget.”

As an example, and noting she was  using “completely made-up numbers” for
the purpose of the explanation, Futrell  said that if ECBH had budgeted $500
per month for Medicaid outpatient services  but spent only $200 in a given
month, ECBH still considered the entire $500 a  liability.

This accounting method was chosen  because it is the most conservative,
assuming that all Medicaid service funds  will be spent, she said. ECBH plans
to use the conservative approach until the  agency has enough history with
providers to be able to make accurate  estimations, Futrell said.

But McLain said ECBH is making light  of very real risk. The new ECBH model
is essentially that of an insurance  company, he said.
“There’s a lot of risk in being an  insurance company,” McLain said. “You’
re on the hook for potential  liabilities.”

Although the ECBH board has been  assured there are risk management
procedures in place, board members have not  been informed of what those procedures
are, he said.
“That scares the heck out of me,”  McLain said.

The ECBH Area Board of Commissioners  will meet Tuesday at 7 p.m. in the
EMS building at 205 E. Main Street in  Williamston. The meeting will include a
public hearing on ECBH’s 2012-13  budget.
201204-05 TheDailyAdvance - ECBH Money Management.zip 5029K

Leg. Correspondence, CMS, US HHS & Reports

Mary K. Short is a strong and active advocate and the parent caregiver of an adult DD recipient with profound needs. She fights tirelessly for the rights of her daughter, Katie and other special families, as well as a great deal of time keeping folks informed! Posted with Mary's permission.


Mary and her daughter live in NC House District 88 and Senate District 42. Her daughter is being served by Smoky Mountain LME.

From: MaryKShort@aol.com
To: Bev.Perdue@nc.gov, Thom.Tillis@ncleg.net, Phil.Berger@ncleg.net
CC: MaryKShort@aol.com, louis.pate@ncleg.net, justin.burr@ncleg.net, nelson.dollar@ncleg.net, martha.alexander@ncleg.net, william.brisson@ncleg.net, bill.current@ncleg.net, mark.hollo@ncleg.net, pat.hurley@ncleg.net, bert.jones@ncleg.net, marian.mclawhorn@ncleg.net, tom.murry@ncleg.net, fred.steen@ncleg.net, austin.allran@ncleg.net, doug.berger@ncleg.net, stan.bingham@ncleg.net, harris.blake@ncleg.net, jim.davis@ncleg.net, fletcher.hartsell@ncleg.net, eric.mansfield@ncleg.net, martin.nesbitt@ncleg.net, william.purcell@ncleg.net, tommy.tucker@ncleg.net, james.forrester@ncleg.net, andrew.brock@ncleg.net, ralph.hise@ncleg.net, marilyn.avila@ncleg.net, rayne.brown@ncleg.net, tricia.cotham@ncleg.net, beverly.earle@ncleg.net, shirley.randleman@ncleg.net, mitchell.setzer@ncleg.net
Sent: 6/25/2012 11:06:27 A.M. Eastern Daylight Time
Subj: Delay NC Innovations Expansion - URGENT

Dear Gov. Perdue, Speaker Tillis, President Pro Tempore Berger, and ladies and gentlemen of the NCGA:

I have tried over and over again to inform you of the urgent concerns I have had about DHHS/DMA/DMHDDSAS (the Department and its Divisions) in regards to the Medicaid 1915(c) waivers for the IDD/MR/DD/Autism population. I have tried to inform you of my urgent concerns regarding the role of CMS in approving waivers that were in violation of any number of federal statutes beyond CMS's own regulations, particularly the ADA and Olmstead.

On June 12, 2012, the Office of the Inspector General of the U.S. Department of Health & Human Services issued a report entitled, "Oversight of Quality of Care in Medicaid Home and Community Based Services Waiver Programs." I have provided the link to that report and copied the summary posted to the OIG.HHS.GOV web page below. Please see in particular the text I have highlighted in red/underline/bold.

I am once again asking you to stop the further implementation of the NC Innovations waiver. The fact that too much money has already been spent on the ADMINSTRATIVE components of implementation, is no justification for continuing the implementation. None of the LME/MCO's that have already transitioned have been adequately prepared. The absolute proof is NOT whether any one beneficiary has been institutionalized since their transition, but rather, the fact that none of the LME/MCO's is negotiating "enhanced" rates with providers for those beneficiaries who had been receiving CAP-MR/DD Enhanced services. Those Enhanced services are not available in the NC Innovations waiver.

Appendix J: Cost Neutrality Demonstration of the CAP-MR/DD Comprehensive Waiver (CMS NC 0662.R00.02 Jul 01, 2010): d. Estimate of Factor D. i. Non-Concurrent Waiver (chart). This document lists: Enhanced Personal Care Services # Users 366; Respite Nursing LPN # Users 37; Respite Nursing RN # Users 41; and Enhanced Respite Care # Users 415.

PBH, Pam Shipman, stood before the DWAC on Wednesday, June 20, 2012 and said that only 4 persons had a reduction/denial in services due to the transition: "No denials except for 4 requests for services or items not allowed under Innovations." [Link to document: (see page 11) http://www.ncdhhs.gov/mhddsas/providers/1915bcwaiver/dwac/6-20-12/pbh-presentation6-20-12.pdf.]

Please, delay the further implementation of the NC Innovations waiver.

Mary K. Short
828-632-5888 or 704-451-4144 (cell)

http://oig.hhs.gov/oei/reports/oei-02-08-00170.asp
Report (OEI-02-08-00170)

06-21-2012
Oversight of Quality of Care in Medicaid Home and Community Based Services Waiver Programs

Complete Report

Download the complete report: http://oig.hhs.gov/oei/reports/oei-02-08-00170.pdf

Summary
WHY WE DID THIS STUDY

In recent years, States have altered their approach to providing Medicaid-funded long-term care services. Rather than providing the majority of that care in institutions-such as nursing homes-States are now providing more care in homes and other community-based settings. States most often provide this care through 1915(c) home and community-based services (HCBS) waiver programs, and the individuals served by these programs are most commonly disabled and/or over age 65. In fiscal year 2010, Medicaid expenditures for HCBS waiver programs serving this population totaled an estimated $8.9 billion. Strong oversight of waiver programs is critical to ensuring the quality of care provided to HCBS beneficiaries. The beneficiaries who rely on HCBS waiver programs are among Medicaid's most vulnerable, and the nature of these programs puts beneficiaries at particular risk of receiving inadequate care.

HOW WE DID THIS STUDY

States must operate their HCBS waiver programs in accordance with certain "assurances," including three assurances related to quality of care. To meet these assurances, States must demonstrate that they have systems to effectively monitor the adequacy of service plans, the qualifications of providers, and the health and welfare of beneficiaries. We based this study on a review of documents from CMS's most recent quality review of waiver programs from 25 States, as well as information gathered from structured interviews with staff from the 10 CMS regional offices.

WHAT WE FOUND

Seven of the twenty-five States that we reviewed did not have adequate systems to ensure the quality of care provided to beneficiaries. Although CMS renewed the waiver programs in all seven of these States, three did not adequately correct identified problems. Not only did these States fail to correct these problems before renewal of their programs, they also had still not adequately addressed the problems long after renewal. In addition, CMS did not consistently use the few tools it has to ensure that States correct problems related to quality of care.

WHAT WE RECOMMEND

We recommend that CMS: (1) provide additional guidance to States to help ensure that they meet the assurances, (2) require States that do not meet one or more assurances to develop corrective action plans, (3) require at least one onsite visit before a waiver program is renewed and develop detailed protocols for such visits, (4) develop a broader array of approaches to ensure compliance with each of the assurances, and (5) make information about State compliance with the assurances available to the public. CMS concurred with four of the recommendations and partially concurred with our recommendation to require onsite visits.

22 June 2012

Comments to DWAC 6/20

On Wednesday, June 20th, my daughter, her helper Kim, and I attended the DHHS Waiver Advisory Committee (DWAC) Meeting. After lengthy powerpoint presentations by DMA's Behavioral Health Policy Chief, Kellie Crosby, and Piedmont Behavioral Health's CEO, Pam Shipman, the DWAC meeting was opened for public comment... the time that consumers, advocates, caregivers and parents are able to express concerns in 3 minute increments

This was the second DWAC meeting I have attended and having no shortage of words, I find that 3 minutes is hardly ample time for anyone to present much of anything credibly nor share information, stories, experiences, or supporting documents. Not on a topic of this magnitude with such a vast variety of concerns and tales. Some of my fellow public commenters drove to Raleigh from as far as Asheville and Wilmington to have their 3 minutes of voice heard.

On Wednesday, I requested of the DWAC Committee the opportunity to present on behalf of parents.

I also signed my non-verbal daughter, Isabel, up to speak... 

Following my comments (below), Isabel proudly strutted up to the podium, leaned in close, put her mouth right on the microphone and blew. I'm not certain who was more amused by her antics, Isabel or her attentive audience. 

And in that moment, the room visibly softened... as though for that brief moment, we all remembered the real reasons that brought us together - for that brief moment, we had a commonality, a shared goal and purpose... We were all on the same team, one village, for one brief moment. 

And it does take a village.

With my prompting, she showed the board members the ASL signs for "friend" and "help." I asked her if Miss Kim was her friend that helped her, she responded by signing "yes." I asked if she loved Miss Kim, she again responded "yes" and then told us she was finished, turned around and grabbed her Happy Meal box and sat down. 

Unlike her mom, Isabel is a lady of few words - however, in my humble and biased opinion, she delivered the most powerful message of all that day.

My Speaking Notes to the DWAC Committee

Before I begin, I'd just like to say for the record: 
  • The added position / role of Community Guide is a JOKE. I guarantee I - or most any parent or Direct Care Support Staff in this room - have more knowledge and resources than your best Community Guide. 
  • Call Center / Telephone Support is an INSULT to every PARENT in this room - an insult not unlike being spat upon. 
Recipients and families continue to have NO failsafe, constitutionally protected Due Process rights regarding appeals to a third party with the authority to make a final decision. 

While the Regulatory Reform Act of 2011 does authorize the ALJ final authority over Medicaid CAP decisions as of January 1, 2012, the powers that be cannot agree on the waiver language to CMS which will allow this to happen, thus recipients still have NO DUE PROCESS save hiring counsel. --My husband is an attorney & WE could not afford a 10-20K retainer to file a lawsuit against the state.

I’ll be happy to explain in more detail, but I urge you to review the Open Letter and Outline that I forwarded to Mr. Marsh again today for redistribution to the Committee - if you’re impatient, you can also find the information on my blog - and I’ll be happy to provide you with the URL.

Recipients and families, those of us who have the MOST to lose and suffer, continue to NOT be heard. 

Has anyone here seen or reviewed any of the 540 Public Comments to DMA in 2011 that Mary Short just spoke of? -- If you haven’t, it’s also on the blog.

I’d like to respectfully request of the Committee permission to present as a parent representative at the next DWAC meeting. I’m sure other parents would like that opportunity also. Legislative and Committee members must hear from the folks not paid to sit in the front rows with their hands up begging to be called upon.

Recipients and families, those of us who have the MOST to lose and suffer, continue to NOT have equal ownership in insuring the success of this mental health overhaul. 

Until every stakeholder has equal voice and equal ownership in this process, there will be no bridging of this divide and there will be no mutual success.

The recent hot topic, if you read the news, is HB 1075 which authorizes LME / MCO Director’s giving themselves a raise among other things - if you haven’t seen it, it’s on the blog.

Regarding this HB, Representative Dollar addressed the concerns of his GA colleagues in a recent legislative meeting by assuring them that the bill could always be changed later... 

We continue to trim the fat off the bottom of this dynamic. There is no more fat to trim! Direct care staff make nothing for the jobs they do & will be making even less as hours continue to be shifted to lower paying reimbursement rates. --Again, see my outline and supporting documents; on the blog.

Per DOJ findings -- While the state scurries to reintegrate one population of citizens from inappropriate placements in state facilities back into community settings … we are moving another very vulnerable population of citizens living at home with their families, slowly but steadily, in the other direction - into crisis.

WE CANNOT FILL A GAP BY DIGGING A BIGGER HOLE!

It’s NOT ENOUGH that we can go back and make changes AFTER the damage has been done!

Children and Families, like those in this room today, may never recover from such damage -- it has taken them a lifetime to acquire the skills they have today.

And there WILL be damage.
Let me say that again: THERE WILL BE DAMAGE.

Think: “The Titanic.” --They knew. They were warned. 
And there was no tip to that iceberg either...

Thank you.

18 June 2012

WSJ article: HB1075 & MCO/LME quest for power

Note: highlights, links and italicized quotes are entirely my own mark-up and not reflective of the author nor original posting, link below. Further, while, I usually avoid reading reader comments, I simply had to include the two articulate viewpoints posted at the time of this blog, following the article.

Changes to bill would give more power to groups overseeing mental health services
Published: June 18, 2012
By Richard Craver

[ Original Winston Salem Journal article posted here. ]

A late change to a bill giving more power to groups that oversee behavioral-health services in the state is raising concerns among advocates because the new language allows oversight groups to gain even more authority than the initial bill did.

The changes to the bill would create a new category of oversight group — a behavioral health authority. A BHA could borrow money and buy or sell property, would have no limits on executive salaries and would not be required to have any advocacy group members on its board.

The new language was inserted into N.C. House Bill 1075 on June 11 — five days after the bill had passed the House.

The substitute bill has been put on the Senate's agenda for Tuesday. If approved, the bill would return to the House for review and potential passage.

The changes would allow a local management entity (LME), such as CenterPoint Human Services, to become a behaviorial health authority after three years of serving as a managed-care organization (MCO) under the Medicaid waiver program being rolled out in the state.

The waiver program is intended to combine the management of Medicaid and state funds at the community level to reduce costs and add more accountability. MCOs would operate with fewer restrictions on how they manage the mental-health, developmental-disability and substance-abuse providers and services they oversee.

Becoming a behavioral health authority would take the oversight groups' level of independence to a higher level since public authorities can borrow money and buy or sell property. Authorities have limited or no local government oversight on their overall operations. They are allowed to file lawsuits and have a legal staff.

The initial bill already shifted much of the oversight of an MCO from county commissioners to the N.C. Department of Health and Human Services. The DHHS secretary would be required to approve a group's change to a behavioral health authority.

Local and statewide advocates expressed exasperation when informed of the new language. They worry that past mistakes in state mental-health reform will be repeated, hurting patient care and costing the state tens of millions of dollars in wasted spending.

David Cornwell, executive director of N.C. Mental Hope, said the proposals before the latest change already gave MCOs the best of being a private and a public entity.

"I don't see how it's conscionable for largely clueless legislators to consider such far-reaching changes to an already shattered system at a time the state faces multiple lawsuits over its (behavioral-health) services," Cornwell said.

Controversies over care

The bill is the latest development in the controversial recommendations submitted in September by Piedmont Behavioral Healthcare and the N.C. Council of Community Programs.

The bill's primary sponsors are state Reps. Nelson Dollar, R-Wake, and Justin Burr, R-Montgomery. The bill has bipartisan co-sponsor support.

Senate sponsors of the new language are not identified. Dollar and Burr could not be reached for comment about whether they approve of the new language.

Piedmont Behavioral Healthcare is the only local management entity operating as an MCO, but 11 MCOs, including CenterPoint, are supposed to be operating statewide by Jan. 1.

The council, led by CenterPoint executive director Betty Taylor, wants to eliminate limits on top executive salaries because MCOs compete with private-sector insurance companies for staff with specific expertise. Salary proposals would not require the approval of the DHHS secretary.

The bill removes the requirement that county commissioners approve the hiring of an MCO director, giving that responsibility to the MCO board. Advocates say many LME boards already operate as rubber stamps for their executive directors.

The benefit for county governments, particularly those with tight budgets, is that the changes could limit their liability for MCO overspending and put it on DHHS.

The new language represents substantial additions to those recommended by a 24-member General Assembly subcommittee before the legislative session began in May.

For example, advocates and analysts said they are concerned that although membership on a BHA board is expected to reflect expertise on local needs and priorities, including at least one family member or individual from an advocacy group is suggested only "when possible."

"There appear to be no absolute compositional requirements for the board of a behavioral health authority," said Mark Botts, an expert on mental health records and confidentiality at UNC Chapel Hill School of Government, in an email to advocates.

The initial bill required MCO board seats for a county commissioner, individuals or family members of those with behavioral-health issues, a member of the general public and professionals with expertise in health care.

Botts' email said a behavioral health authority would have even fewer requirements for board composition than in the current statutes or the previous version of the bill.

Laurie Coker, a local advocate who served on the General Assembly subcommittee, said a major concern is whether MCOs will be more responsive to customer demands.

"There have been troubling additions to the original bill on MCO governance," said Coker, who also serves director of the N.C. Consumer Advocacy, Networking and Support Organization.

"We could move toward much more privatized system management, in that public input and responsibility through counties could be cut out altogether from local management. Yet we supposedly are to have a public managed-care system, and not a private one."

Coker said the initial bill reflected agreements derived from "a level of critical discussion rarely had in committee meetings that involve such a variety of perspectives.

"North Carolina doesn't need further complication and confusion added to our already substantial system change. We need the inclusion of consumers, family members and county officials to ensure best outcomes locally."

Worries about unknowns

Al Delia, acting DHHS secretary, acknowledges that patients and caregivers are worried about the unknown. He said LMEs must clear several hurdles with state regulators before managed care is instituted, and mistakes are being fixed.

"DHHS believes this amendment represents a substantive change and that it deserves more thorough discussion," said Julie Henry, DHHS' acting director of public affairs.

"We are concerned about the limits the measure places on DHHS' authority and oversight. The amendment would exempt BHAs from provisions of the state mental health statute."

In an exchange reported by the Associated Press, Sen. Jim Davis, R-Macon, said "this whole thing scares me to death" during a discussion of the House bill before it was referred to the committee on mental health and youth services. The discussion, which lasted several hours, appears to have taken place before new language was inserted.

If lawmakers struggle with this bill, Davis asked, "How are we going to take care of the folks that this governance is supposed to be protecting?"

Dollar told Davis turning back now is a mistake.

Otherwise, Dollar added, "You're almost going to doom this iteration of reform to failure, and I would just submit that we cannot afford to do that for the citizens of this state."

Several legislators serving the Triad said the complex nature of creating a BHA will require more time to understand than the current short legislative session will allow.

Dave Plyler, a Forsyth County commissioner who has paid close attention to local behavioral-health issues, said, "Legislators appear badly divided with no sense of what needs to be accomplished. One size does not fit all."

The changes to the bill come as CenterPoint is requesting $1.53 million from Forsyth County to help with its estimated $3.7 million cost of transitioning to a Medicaid waiver program.

CenterPoint receives taxpayer funding as a local management entity in Davie, Forsyth, Rockingham and Stokes counties.

Without the allocation — to be paid back over five years — the agency warned it would cut its discretionary funding for services in Forsyth by about 42 percent. The agency also wants one-time funding of $228,579 from Rockingham, $148,127 from Stokes and $89,270 from Davie.

CenterPoint's first MCO application was rejected in July, primarily because a health-care consultant, Mercer, questioned the agency's financial liquidity, information technology and clinical operations. Mercer recommended CenterPoint pursue extra funding from the counties it serves and alternative sources. CenterPoint's second application was approved in October.

Advocates worried about the threatened service cuts at a time when more people with behavioral-health issues lack insurance.

Although the counties provide about $5.3 million annually, they do not, by state statute, have a say in how the money is spent.

"In an already underfunded system, a further reduction compounds the unmet needs," Taylor said in a statement.

However, at a May board meeting, Forsyth commissioners had too many questions about CenterPoint finances and legislative changes to decide on the funding request. Forsyth County Manager Dudley Watts said the board is working on finding a time for a briefing session on the issue in June.

Reader Comments
Marsha Hammond · University of North Texas
HOW IS IT THAT FEDERAL AND STATE MONIES ARE BEING USED TO CREATE EVER MORE PRIVATIZED PUBLIC ENTERPRISES SUCH AS THE LME-MCO'S, THE OLD COMMUNITY MENTAL HEALTH CENTERS?
What an important piece of news coverage and its coming right at the time when most providers are being denied or have refused to be recredentialed by the LME-MCO's, the old community health centers, as the Medicaid Waiver moves across the state in order that they continue to see Medicaid patients who have serious mental illnesses. For the population at large, this means people who could be dangerous or at least suicidal, roaming the streets due to no mental health treatment.

Can you say: Virginia Tech? Can you say: going postal? This is a public health dilemma, make no mistake about it. This is not an exaggeration. Yet, there will be no one clearly to sue when that happens and the real culprits will be the LME-MCO's who have further mismanaged Medicaid-----FEDERAL AND STATE ------monies.

For God's sake, Smoky Mountain Center (SMC) LME-MCO has a lobbyist. Where do they hide that in their accounting data? How is it that an entity funded by tax dollars has a lobbyist to protect its own interest? Here he is and he is registered with the state: Name: Joseph H. Lanier Address: PO Box 30519 Raleigh, NC 27622-0519 Phone: (919) 329-3871 http://www.secretary.state.nc.us/lobbyists/Lobbyist.aspx?PId=9039109.

And all this is taking place w/ the state legislature looking on, scratching their heads, being fed a wagonload of 'if you don't' stories by Piedmont Behavioral Health's LME-MCO (pbh) CEO Betty Taylor who wants a big fat raise for herself---an undisputable raise. And that LME-MCO is the one that started all this Medicaid Waiver stuff 5 years ago. And now it has spread like the bubonic plague across the state with officials at DHHS looking on the matter as a way to further distance themselves from the mess they created when the NC State Legislature passed a NC Mental Health Reform law in 2000.

So, how does all of this relate to the Medicaid Waiver, which has been hoisted onto the LME-MCO's, the old community mental health centers, and is now moving step-wise across the state. Bear in mind that the purpose of the Medicaid Waiver, which was FEDERALLY allowed (we are talking about FEDERAL TAX DOLLARS HERE----not private insurance all the while the proposal is about a hostile take-over of FEDERALLY MANAGED ENTITIES) is to allow the LME-MCO''s to more efficiently manage their capped Medicaid $$.

Anything BUT efficiency iis what has taken place over the past year. Please refer to my multiple interactions with Smoky Mountain Center LME-MCO and Western Highlands Network LME-MCO over the past six months at my blog, http://madame-defarge.blogspot.com/, the purpose of which is to document the profound difficulties of working with these organizations. They have little accountability, are poorly organized.

The independent Mercer Reports have re-emphasized this time again and they are not even looking at any comments or feedback from providers or impacted citizens with mental health challenges. The Mercer Report is simply going into the LME-MCO and saying, 'show us what you've got.' What kind of report is that? Do they not understand that the LME-MCO will be putting its very best foot forward under such perusal?

Providers, you know, the ones who actually do the work of helping people who are suicidal and homicidal, have absolutely no representation anywhere at any table regarding even basic matters like the re-credentialinng process of providers who are already credentialed and licensed and have been seeing Medicaid clients FOR DECADES. And so, providers have done what any underrepresented group would do: OPT OUT. GONE. Refusing to take Medicaid. Sat down at the front of the bus, if you're like me: refusing to give up your seat.

We're not talking about a few citizens w/o mental health coverage. We are talking about 80,000 Medicaid recipients under WHN LME; 130,000 Medicaid recipients are SMC.

For January, 2012, WHN LME-MCO presented data at its monthly board meeting that only FIVE PERCENT of those 80,000 people had received mental health services.

Assuming that this trend will continue, this means that most of the FEDERAL AND STATE MONIES is being used to pay the fat salaries of the likes of Betty Taylor and the employees at the LME-MCO's who push paper around and standardly have salaries of 50 grand/ year w/ benefits.

Is THIS how the citizens of NC wish to have their tax dollars used? Isn't it supposed to be used to provide mental health services to people in need? Don't citizens deserve providers who are well credentialed with doctoral degrees who studied years in order to become experts on human behavior?

We may not be on Wall Street, but this is very much a Wall Street fat-cat CEO demanding---and getting it-----unlimited amounts of money in order to create a world and domain that has nothing to do with what it is supposed to be doing. There's not just one elephant in this room: there's an elephant at every LME-MCO in this state now: monkey see no evil, monkey do no evil.

Will NO ONE in the NC State Legislature rebutt this bill whose intention is simply to increase the inefficiency of the LME-MCO. For inefficiency is directly related to non-accountability and the very fact that things have been allowed to get this far----WHEN WE'RE TALKING ABOUT THE USE OF FEDERAL AND STATE TAX DOLLARS-----is indeed, 'scaring me to death', just like the NC State Legislator stated.

Marsha V. Hammond, PhD, Licensed Psychologist, Asheville, NC.
NC Mental Health Reform blogspot since 2007: http://madame-defarge.blogspot.com/.
          ------
Pamela Jarrett · Appalachian State University
Letter to the Editor:
The article by Richard Craven in Monday's Journal does not do justice to the depths that the mental health bottom feeders can sink to regarding the care for mentally ill and mentally disadvantaged people in this state. It chills me to think of LMEs gaining yet even more power locally and regionally to charge up huge amounts in Medicaid and Medicare funds, but they are following the hospitals of the state who charge enormous fees for emergency or patient care, yet are not accountable to patients or families.

The person seeking help at the street level is still facing stigma, often poverty, lack of mental health education, and 19th and early 20th century treatment. I have personally been treated in a rural hospital with isolation as a salve for my depression, and have seen people put in four-point restraints for being psychotic while waiting for a hospital bed. It is impossible to find a psychiatrist or psychologist in my county (Swain) or in the neighboring counties (Jackson, Macon and Graham).

There are no longer any civil rights attorneys in the state to keep a check on whether patients are granted even their basic Constitutional rights, as the state created a state agency for them under DHHS some years ago. All the good civil rights attorneys now protect the state against lawsuits, and humbly do not answer questions the public may have about some terrible medical abuse, citing a 'conflict of interest.' One cannot even get a referral to an outside attorney who might consideryour case.
So, now the LMEs get to magically transform into entities that are impervious to local government, and who will act without oversight by the state, as the local hospitals do now. They will even have their own lawyers, who I am sure will be well paid, but out of what funds--Medicaid or Medicare?
I see only doom and gloom ahead for the mentally ill in NC. I guess it will take a few people dying before this autocracy will start being responsible to the government. It will take a few more dying before we begin to see government oversight and a responsive legal system.
Pamela Jarrett, M.A., J.D.