Showing posts with label PBH. Show all posts
Showing posts with label PBH. Show all posts

06 September 2012

NCGA JLOC-HHS Meeting Agenda 9/10

SUBCOMMITTEE ON MENTAL HEALTH

AGENDA

September 10, 2012, 1:00 P.M.,
Room 643, Legislative Office Building

Introductions and Comments 1:00-1:10
Chairman Burr
Chairman Pate

Review of Law Establishing Subcommittee Charge 1:10-1:15
FRD Staff

Overview of Major Mental Health Reform 1:15-2:00

  • Major Legislative and Policy Changes 2001 – Present
    Research Staff
(Presentation will address major changes in the State’s delivery of mental health services, including information on Olmstead/ADA – description, impact on the state’s mental health system)

  • Impact on State Facilities’ and Community Psychiatric Hospitals 2:00 – 2:45
    Ms. Laura White, Team Leader Psychiatric Hospitals
    Division of State Operated Healthcare Facilities

(Presentation will address number of people released into the community as a result of reforms/policy changes, adequacy of beds and services; changes in availability of state facility and community mental health beds over this period; state facility and community mental health bed capacity; state facility catchment areas)

  • LME Perspective on Impact of Major Reform/Policy Changes 2:45 – 3:30
    Pam Shipman, CEO PBH

Impact of Mental Health Policy on Law Enforcement 3:15 – 3:30
Eddie Caldwell, Executive Director, NC Sherriff’s Association

Committee Discussion/Comments 3:30-4:00

Adjourn

19 July 2012

N&O: LME Money Woes

Money woes snag mental-health center

Published Wed, Jul 18, 2012 09:38 PM
By Lynn Bonner - lbonner@newsobserver.com
The News and Observer

[ original article ]

The state’s latest plan for community mental health services has gotten off to a bad start with the first local mental health office to become a managed-care agency falling into a $3 million financial hole in its first six months of operation.

Western Highlands Network, which covers eight counties including Buncombe and Rutherford, is working with the state Department of Health and Human Services on a plan to correct the money problems that started the first day it became a managed-care agency in January.

The changes may involve reducing some mental health treatments the office believes are excessive, telling service providers to return money for services that were not approved, and enforcing rules for providers filing payment claims.

The experiences in the west are significant because, under a new state law, all government-paid mental health services in the state will be handled the way they are in Western Highlands. Advocates for people with disabilities are skeptical that the new system will work, and they worry consumers will be the losers.

Last year, the legislature passed a law that requires all local mental health offices to convert to managed-care agencies by January 2013, copying a system started in the state in 2005 by Piedmont Behavioral Health, a local mental health office now called PBH.

As managed-care agencies, the local mental health offices’ relationships with the state, mentally ill people in their coverage areas, and providers will change significantly. Each local office will be given a set amount of Medicaid and state money to treat patients. If they spend too much, they have to cover the costs. Local offices that save money can spend it on more Medicaid mental-health services.

Though the local offices take on financial risks, they also have more control. Under managed care, they will say which providers will treat patients in the region and what kinds of treatment – and how much government-paid mental-health treatment patients receive.

Choice and uniformity

This is the biggest change to mental-health services in the state in more than a decade. In 2001, the state told local offices to stop offering treatment in favor of having patients seek out private providers. The intent was to give patients more choice and foster uniformity across the state.

That 2001 reform was an expensive failure. Patients were left waiting for beds in state psychiatric hospitals while the state spent millions on low-level services for people who didn’t need treatment. A legislative report from 2009 said the state spent up to $635.3 million too much for community mental-health services between April 2006 and February 2009.

Legislators talked for years about giving more local offices more power and passed a law last year requiring it. Western Highlands was the first regional office to convert. Two more offices have followed. All 11 local offices will be managed-care agencies by January 2013. The office covering Durham and Wake counties will be in the last group converting.

The local offices do extensive prep work before they convert and a consulting firm assesses their readiness to switch.

Outdated figures


Western Highlands has been losing money all year. One of the problems, said CEO Arthur D. Carder, is that the lump-sum payment the office received to care for patients was based on outdated information from 2009 that did not take into account increased costs in 2010 and 2011.

Al Delia, the state Department of Health and Human Services acting secretary, said the office has been closely monitoring Western Highlands and is talking about taking another look at whether the $9.7 million a month the office receives to pay for patient treatment is enough.

Delia was in the western counties Wednesday, meeting with members of the office’s governing board.
“There’s going to be some adjustment in culture and attitudes and mindset in leadership of all these organizations in making these transitions,” Delia said.

Skeptics question whether managed care is the best system for all consumers.

“I think we’ve rushed to judgment on this,” said Dave Richard, executive director of The Arc of North Carolina. Parents of children with developmental disabilities and the agencies that provide services to the disabled have been among the most vocal skeptics of managed care, questioning conversion to a system they say isn’t designed to meet their needs.

“If you’re going to give up the system where people had a lot of choice to one where choice is limited and is controlled by one entity, you’d hope to see better outcomes,” Richard said. “We haven’t seen that with folks with developmental disabilities.”

Lawsuit under way

State officials and legislators have looked to PBH as an example for years, but not everyone is a fan.
Disability Rights North Carolina, an advocacy group, is suing PBH in federal court over allegations that it did not give residents proper notice of changes in their services or let them know how they could appeal.

Western Highland’s problems show that the office wasn’t ready to become a managed-care agency, said Vicki Smith, Disability Rights’ executive director.

“It would almost be too simple to say this was predictable,” she said.

Legislators are convinced that managed care is the path to follow for mental-health care. The legislature is committed to a new system where government does more than just pay the bills, said Rep. Nelson Dollar, a Cary Republican.

“We want to manage the care and the individuals receiving the care, and manage the costs and how we’re allocating scarce taxpayer resources,” he said.

Legislators have been working with DHHS since winter on Western Highland’s financial problems, Dollar said. A new law that adds members with experience in managed-care finances, insurance and health care administration to local governing boards is meant to strengthen oversight of Western Highlands and other managed-care operations.

“We’re going to be working with the department to straighten out issues like the ones that are being encountered in Western Highlands and making sure what lessons are learned there are being incorporated in the conversions in other areas of the state,” he said.

25 June 2012

Leg. Correspondence, CMS, US HHS & Reports

Mary K. Short is a strong and active advocate and the parent caregiver of an adult DD recipient with profound needs. She fights tirelessly for the rights of her daughter, Katie and other special families, as well as a great deal of time keeping folks informed! Posted with Mary's permission.


Mary and her daughter live in NC House District 88 and Senate District 42. Her daughter is being served by Smoky Mountain LME.

From: MaryKShort@aol.com
To: Bev.Perdue@nc.gov, Thom.Tillis@ncleg.net, Phil.Berger@ncleg.net
CC: MaryKShort@aol.com, louis.pate@ncleg.net, justin.burr@ncleg.net, nelson.dollar@ncleg.net, martha.alexander@ncleg.net, william.brisson@ncleg.net, bill.current@ncleg.net, mark.hollo@ncleg.net, pat.hurley@ncleg.net, bert.jones@ncleg.net, marian.mclawhorn@ncleg.net, tom.murry@ncleg.net, fred.steen@ncleg.net, austin.allran@ncleg.net, doug.berger@ncleg.net, stan.bingham@ncleg.net, harris.blake@ncleg.net, jim.davis@ncleg.net, fletcher.hartsell@ncleg.net, eric.mansfield@ncleg.net, martin.nesbitt@ncleg.net, william.purcell@ncleg.net, tommy.tucker@ncleg.net, james.forrester@ncleg.net, andrew.brock@ncleg.net, ralph.hise@ncleg.net, marilyn.avila@ncleg.net, rayne.brown@ncleg.net, tricia.cotham@ncleg.net, beverly.earle@ncleg.net, shirley.randleman@ncleg.net, mitchell.setzer@ncleg.net
Sent: 6/25/2012 11:06:27 A.M. Eastern Daylight Time
Subj: Delay NC Innovations Expansion - URGENT

Dear Gov. Perdue, Speaker Tillis, President Pro Tempore Berger, and ladies and gentlemen of the NCGA:

I have tried over and over again to inform you of the urgent concerns I have had about DHHS/DMA/DMHDDSAS (the Department and its Divisions) in regards to the Medicaid 1915(c) waivers for the IDD/MR/DD/Autism population. I have tried to inform you of my urgent concerns regarding the role of CMS in approving waivers that were in violation of any number of federal statutes beyond CMS's own regulations, particularly the ADA and Olmstead.

On June 12, 2012, the Office of the Inspector General of the U.S. Department of Health & Human Services issued a report entitled, "Oversight of Quality of Care in Medicaid Home and Community Based Services Waiver Programs." I have provided the link to that report and copied the summary posted to the OIG.HHS.GOV web page below. Please see in particular the text I have highlighted in red/underline/bold.

I am once again asking you to stop the further implementation of the NC Innovations waiver. The fact that too much money has already been spent on the ADMINSTRATIVE components of implementation, is no justification for continuing the implementation. None of the LME/MCO's that have already transitioned have been adequately prepared. The absolute proof is NOT whether any one beneficiary has been institutionalized since their transition, but rather, the fact that none of the LME/MCO's is negotiating "enhanced" rates with providers for those beneficiaries who had been receiving CAP-MR/DD Enhanced services. Those Enhanced services are not available in the NC Innovations waiver.

Appendix J: Cost Neutrality Demonstration of the CAP-MR/DD Comprehensive Waiver (CMS NC 0662.R00.02 Jul 01, 2010): d. Estimate of Factor D. i. Non-Concurrent Waiver (chart). This document lists: Enhanced Personal Care Services # Users 366; Respite Nursing LPN # Users 37; Respite Nursing RN # Users 41; and Enhanced Respite Care # Users 415.

PBH, Pam Shipman, stood before the DWAC on Wednesday, June 20, 2012 and said that only 4 persons had a reduction/denial in services due to the transition: "No denials except for 4 requests for services or items not allowed under Innovations." [Link to document: (see page 11) http://www.ncdhhs.gov/mhddsas/providers/1915bcwaiver/dwac/6-20-12/pbh-presentation6-20-12.pdf.]

Please, delay the further implementation of the NC Innovations waiver.

Mary K. Short
828-632-5888 or 704-451-4144 (cell)

http://oig.hhs.gov/oei/reports/oei-02-08-00170.asp
Report (OEI-02-08-00170)

06-21-2012
Oversight of Quality of Care in Medicaid Home and Community Based Services Waiver Programs

Complete Report

Download the complete report: http://oig.hhs.gov/oei/reports/oei-02-08-00170.pdf

Summary
WHY WE DID THIS STUDY

In recent years, States have altered their approach to providing Medicaid-funded long-term care services. Rather than providing the majority of that care in institutions-such as nursing homes-States are now providing more care in homes and other community-based settings. States most often provide this care through 1915(c) home and community-based services (HCBS) waiver programs, and the individuals served by these programs are most commonly disabled and/or over age 65. In fiscal year 2010, Medicaid expenditures for HCBS waiver programs serving this population totaled an estimated $8.9 billion. Strong oversight of waiver programs is critical to ensuring the quality of care provided to HCBS beneficiaries. The beneficiaries who rely on HCBS waiver programs are among Medicaid's most vulnerable, and the nature of these programs puts beneficiaries at particular risk of receiving inadequate care.

HOW WE DID THIS STUDY

States must operate their HCBS waiver programs in accordance with certain "assurances," including three assurances related to quality of care. To meet these assurances, States must demonstrate that they have systems to effectively monitor the adequacy of service plans, the qualifications of providers, and the health and welfare of beneficiaries. We based this study on a review of documents from CMS's most recent quality review of waiver programs from 25 States, as well as information gathered from structured interviews with staff from the 10 CMS regional offices.

WHAT WE FOUND

Seven of the twenty-five States that we reviewed did not have adequate systems to ensure the quality of care provided to beneficiaries. Although CMS renewed the waiver programs in all seven of these States, three did not adequately correct identified problems. Not only did these States fail to correct these problems before renewal of their programs, they also had still not adequately addressed the problems long after renewal. In addition, CMS did not consistently use the few tools it has to ensure that States correct problems related to quality of care.

WHAT WE RECOMMEND

We recommend that CMS: (1) provide additional guidance to States to help ensure that they meet the assurances, (2) require States that do not meet one or more assurances to develop corrective action plans, (3) require at least one onsite visit before a waiver program is renewed and develop detailed protocols for such visits, (4) develop a broader array of approaches to ensure compliance with each of the assurances, and (5) make information about State compliance with the assurances available to the public. CMS concurred with four of the recommendations and partially concurred with our recommendation to require onsite visits.

22 June 2012

Comments to DWAC 6/20

On Wednesday, June 20th, my daughter, her helper Kim, and I attended the DHHS Waiver Advisory Committee (DWAC) Meeting. After lengthy powerpoint presentations by DMA's Behavioral Health Policy Chief, Kellie Crosby, and Piedmont Behavioral Health's CEO, Pam Shipman, the DWAC meeting was opened for public comment... the time that consumers, advocates, caregivers and parents are able to express concerns in 3 minute increments

This was the second DWAC meeting I have attended and having no shortage of words, I find that 3 minutes is hardly ample time for anyone to present much of anything credibly nor share information, stories, experiences, or supporting documents. Not on a topic of this magnitude with such a vast variety of concerns and tales. Some of my fellow public commenters drove to Raleigh from as far as Asheville and Wilmington to have their 3 minutes of voice heard.

On Wednesday, I requested of the DWAC Committee the opportunity to present on behalf of parents.

I also signed my non-verbal daughter, Isabel, up to speak... 

Following my comments (below), Isabel proudly strutted up to the podium, leaned in close, put her mouth right on the microphone and blew. I'm not certain who was more amused by her antics, Isabel or her attentive audience. 

And in that moment, the room visibly softened... as though for that brief moment, we all remembered the real reasons that brought us together - for that brief moment, we had a commonality, a shared goal and purpose... We were all on the same team, one village, for one brief moment. 

And it does take a village.

With my prompting, she showed the board members the ASL signs for "friend" and "help." I asked her if Miss Kim was her friend that helped her, she responded by signing "yes." I asked if she loved Miss Kim, she again responded "yes" and then told us she was finished, turned around and grabbed her Happy Meal box and sat down. 

Unlike her mom, Isabel is a lady of few words - however, in my humble and biased opinion, she delivered the most powerful message of all that day.

My Speaking Notes to the DWAC Committee

Before I begin, I'd just like to say for the record: 
  • The added position / role of Community Guide is a JOKE. I guarantee I - or most any parent or Direct Care Support Staff in this room - have more knowledge and resources than your best Community Guide. 
  • Call Center / Telephone Support is an INSULT to every PARENT in this room - an insult not unlike being spat upon. 
Recipients and families continue to have NO failsafe, constitutionally protected Due Process rights regarding appeals to a third party with the authority to make a final decision. 

While the Regulatory Reform Act of 2011 does authorize the ALJ final authority over Medicaid CAP decisions as of January 1, 2012, the powers that be cannot agree on the waiver language to CMS which will allow this to happen, thus recipients still have NO DUE PROCESS save hiring counsel. --My husband is an attorney & WE could not afford a 10-20K retainer to file a lawsuit against the state.

I’ll be happy to explain in more detail, but I urge you to review the Open Letter and Outline that I forwarded to Mr. Marsh again today for redistribution to the Committee - if you’re impatient, you can also find the information on my blog - and I’ll be happy to provide you with the URL.

Recipients and families, those of us who have the MOST to lose and suffer, continue to NOT be heard. 

Has anyone here seen or reviewed any of the 540 Public Comments to DMA in 2011 that Mary Short just spoke of? -- If you haven’t, it’s also on the blog.

I’d like to respectfully request of the Committee permission to present as a parent representative at the next DWAC meeting. I’m sure other parents would like that opportunity also. Legislative and Committee members must hear from the folks not paid to sit in the front rows with their hands up begging to be called upon.

Recipients and families, those of us who have the MOST to lose and suffer, continue to NOT have equal ownership in insuring the success of this mental health overhaul. 

Until every stakeholder has equal voice and equal ownership in this process, there will be no bridging of this divide and there will be no mutual success.

The recent hot topic, if you read the news, is HB 1075 which authorizes LME / MCO Director’s giving themselves a raise among other things - if you haven’t seen it, it’s on the blog.

Regarding this HB, Representative Dollar addressed the concerns of his GA colleagues in a recent legislative meeting by assuring them that the bill could always be changed later... 

We continue to trim the fat off the bottom of this dynamic. There is no more fat to trim! Direct care staff make nothing for the jobs they do & will be making even less as hours continue to be shifted to lower paying reimbursement rates. --Again, see my outline and supporting documents; on the blog.

Per DOJ findings -- While the state scurries to reintegrate one population of citizens from inappropriate placements in state facilities back into community settings … we are moving another very vulnerable population of citizens living at home with their families, slowly but steadily, in the other direction - into crisis.

WE CANNOT FILL A GAP BY DIGGING A BIGGER HOLE!

It’s NOT ENOUGH that we can go back and make changes AFTER the damage has been done!

Children and Families, like those in this room today, may never recover from such damage -- it has taken them a lifetime to acquire the skills they have today.

And there WILL be damage.
Let me say that again: THERE WILL BE DAMAGE.

Think: “The Titanic.” --They knew. They were warned. 
And there was no tip to that iceberg either...

Thank you.

20 June 2012

NC DHHS DWAC Meeting Agenda 6/20

DHHS Waiver Advisory Committee
The DHHS Waiver Advisory Committee (DWAC) is an advisory body to DHHS that will provide input and consultation over the following:

  • Implementation / Operational phases of the 1915 b/c Medicaid waivers
  • Ongoing LME-MCO operations (Medicaid managed care, Innovations, and LME operations)

The DWAC will meet monthly through 2012, beginning January 2012. In 2013 the DWAC will be reevaluated after all MCOs are operational to ensure that each catchment area has adequate stakeholder representation. In January 2013, the DWAC will transition to quarterly meetings. The chair of DWAC will be selected by its members. Family and consumer members will receive the current standard stipend allowed by state policy. (more)

[ Download 6/20 DWAC Agenda here. ]


18 June 2012

WSJ article: HB1075 & MCO/LME quest for power

Note: highlights, links and italicized quotes are entirely my own mark-up and not reflective of the author nor original posting, link below. Further, while, I usually avoid reading reader comments, I simply had to include the two articulate viewpoints posted at the time of this blog, following the article.

Changes to bill would give more power to groups overseeing mental health services
Published: June 18, 2012
By Richard Craver

[ Original Winston Salem Journal article posted here. ]

A late change to a bill giving more power to groups that oversee behavioral-health services in the state is raising concerns among advocates because the new language allows oversight groups to gain even more authority than the initial bill did.

The changes to the bill would create a new category of oversight group — a behavioral health authority. A BHA could borrow money and buy or sell property, would have no limits on executive salaries and would not be required to have any advocacy group members on its board.

The new language was inserted into N.C. House Bill 1075 on June 11 — five days after the bill had passed the House.

The substitute bill has been put on the Senate's agenda for Tuesday. If approved, the bill would return to the House for review and potential passage.

The changes would allow a local management entity (LME), such as CenterPoint Human Services, to become a behaviorial health authority after three years of serving as a managed-care organization (MCO) under the Medicaid waiver program being rolled out in the state.

The waiver program is intended to combine the management of Medicaid and state funds at the community level to reduce costs and add more accountability. MCOs would operate with fewer restrictions on how they manage the mental-health, developmental-disability and substance-abuse providers and services they oversee.

Becoming a behavioral health authority would take the oversight groups' level of independence to a higher level since public authorities can borrow money and buy or sell property. Authorities have limited or no local government oversight on their overall operations. They are allowed to file lawsuits and have a legal staff.

The initial bill already shifted much of the oversight of an MCO from county commissioners to the N.C. Department of Health and Human Services. The DHHS secretary would be required to approve a group's change to a behavioral health authority.

Local and statewide advocates expressed exasperation when informed of the new language. They worry that past mistakes in state mental-health reform will be repeated, hurting patient care and costing the state tens of millions of dollars in wasted spending.

David Cornwell, executive director of N.C. Mental Hope, said the proposals before the latest change already gave MCOs the best of being a private and a public entity.

"I don't see how it's conscionable for largely clueless legislators to consider such far-reaching changes to an already shattered system at a time the state faces multiple lawsuits over its (behavioral-health) services," Cornwell said.

Controversies over care

The bill is the latest development in the controversial recommendations submitted in September by Piedmont Behavioral Healthcare and the N.C. Council of Community Programs.

The bill's primary sponsors are state Reps. Nelson Dollar, R-Wake, and Justin Burr, R-Montgomery. The bill has bipartisan co-sponsor support.

Senate sponsors of the new language are not identified. Dollar and Burr could not be reached for comment about whether they approve of the new language.

Piedmont Behavioral Healthcare is the only local management entity operating as an MCO, but 11 MCOs, including CenterPoint, are supposed to be operating statewide by Jan. 1.

The council, led by CenterPoint executive director Betty Taylor, wants to eliminate limits on top executive salaries because MCOs compete with private-sector insurance companies for staff with specific expertise. Salary proposals would not require the approval of the DHHS secretary.

The bill removes the requirement that county commissioners approve the hiring of an MCO director, giving that responsibility to the MCO board. Advocates say many LME boards already operate as rubber stamps for their executive directors.

The benefit for county governments, particularly those with tight budgets, is that the changes could limit their liability for MCO overspending and put it on DHHS.

The new language represents substantial additions to those recommended by a 24-member General Assembly subcommittee before the legislative session began in May.

For example, advocates and analysts said they are concerned that although membership on a BHA board is expected to reflect expertise on local needs and priorities, including at least one family member or individual from an advocacy group is suggested only "when possible."

"There appear to be no absolute compositional requirements for the board of a behavioral health authority," said Mark Botts, an expert on mental health records and confidentiality at UNC Chapel Hill School of Government, in an email to advocates.

The initial bill required MCO board seats for a county commissioner, individuals or family members of those with behavioral-health issues, a member of the general public and professionals with expertise in health care.

Botts' email said a behavioral health authority would have even fewer requirements for board composition than in the current statutes or the previous version of the bill.

Laurie Coker, a local advocate who served on the General Assembly subcommittee, said a major concern is whether MCOs will be more responsive to customer demands.

"There have been troubling additions to the original bill on MCO governance," said Coker, who also serves director of the N.C. Consumer Advocacy, Networking and Support Organization.

"We could move toward much more privatized system management, in that public input and responsibility through counties could be cut out altogether from local management. Yet we supposedly are to have a public managed-care system, and not a private one."

Coker said the initial bill reflected agreements derived from "a level of critical discussion rarely had in committee meetings that involve such a variety of perspectives.

"North Carolina doesn't need further complication and confusion added to our already substantial system change. We need the inclusion of consumers, family members and county officials to ensure best outcomes locally."

Worries about unknowns

Al Delia, acting DHHS secretary, acknowledges that patients and caregivers are worried about the unknown. He said LMEs must clear several hurdles with state regulators before managed care is instituted, and mistakes are being fixed.

"DHHS believes this amendment represents a substantive change and that it deserves more thorough discussion," said Julie Henry, DHHS' acting director of public affairs.

"We are concerned about the limits the measure places on DHHS' authority and oversight. The amendment would exempt BHAs from provisions of the state mental health statute."

In an exchange reported by the Associated Press, Sen. Jim Davis, R-Macon, said "this whole thing scares me to death" during a discussion of the House bill before it was referred to the committee on mental health and youth services. The discussion, which lasted several hours, appears to have taken place before new language was inserted.

If lawmakers struggle with this bill, Davis asked, "How are we going to take care of the folks that this governance is supposed to be protecting?"

Dollar told Davis turning back now is a mistake.

Otherwise, Dollar added, "You're almost going to doom this iteration of reform to failure, and I would just submit that we cannot afford to do that for the citizens of this state."

Several legislators serving the Triad said the complex nature of creating a BHA will require more time to understand than the current short legislative session will allow.

Dave Plyler, a Forsyth County commissioner who has paid close attention to local behavioral-health issues, said, "Legislators appear badly divided with no sense of what needs to be accomplished. One size does not fit all."

The changes to the bill come as CenterPoint is requesting $1.53 million from Forsyth County to help with its estimated $3.7 million cost of transitioning to a Medicaid waiver program.

CenterPoint receives taxpayer funding as a local management entity in Davie, Forsyth, Rockingham and Stokes counties.

Without the allocation — to be paid back over five years — the agency warned it would cut its discretionary funding for services in Forsyth by about 42 percent. The agency also wants one-time funding of $228,579 from Rockingham, $148,127 from Stokes and $89,270 from Davie.

CenterPoint's first MCO application was rejected in July, primarily because a health-care consultant, Mercer, questioned the agency's financial liquidity, information technology and clinical operations. Mercer recommended CenterPoint pursue extra funding from the counties it serves and alternative sources. CenterPoint's second application was approved in October.

Advocates worried about the threatened service cuts at a time when more people with behavioral-health issues lack insurance.

Although the counties provide about $5.3 million annually, they do not, by state statute, have a say in how the money is spent.

"In an already underfunded system, a further reduction compounds the unmet needs," Taylor said in a statement.

However, at a May board meeting, Forsyth commissioners had too many questions about CenterPoint finances and legislative changes to decide on the funding request. Forsyth County Manager Dudley Watts said the board is working on finding a time for a briefing session on the issue in June.

Reader Comments
Marsha Hammond · University of North Texas
HOW IS IT THAT FEDERAL AND STATE MONIES ARE BEING USED TO CREATE EVER MORE PRIVATIZED PUBLIC ENTERPRISES SUCH AS THE LME-MCO'S, THE OLD COMMUNITY MENTAL HEALTH CENTERS?
What an important piece of news coverage and its coming right at the time when most providers are being denied or have refused to be recredentialed by the LME-MCO's, the old community health centers, as the Medicaid Waiver moves across the state in order that they continue to see Medicaid patients who have serious mental illnesses. For the population at large, this means people who could be dangerous or at least suicidal, roaming the streets due to no mental health treatment.

Can you say: Virginia Tech? Can you say: going postal? This is a public health dilemma, make no mistake about it. This is not an exaggeration. Yet, there will be no one clearly to sue when that happens and the real culprits will be the LME-MCO's who have further mismanaged Medicaid-----FEDERAL AND STATE ------monies.

For God's sake, Smoky Mountain Center (SMC) LME-MCO has a lobbyist. Where do they hide that in their accounting data? How is it that an entity funded by tax dollars has a lobbyist to protect its own interest? Here he is and he is registered with the state: Name: Joseph H. Lanier Address: PO Box 30519 Raleigh, NC 27622-0519 Phone: (919) 329-3871 http://www.secretary.state.nc.us/lobbyists/Lobbyist.aspx?PId=9039109.

And all this is taking place w/ the state legislature looking on, scratching their heads, being fed a wagonload of 'if you don't' stories by Piedmont Behavioral Health's LME-MCO (pbh) CEO Betty Taylor who wants a big fat raise for herself---an undisputable raise. And that LME-MCO is the one that started all this Medicaid Waiver stuff 5 years ago. And now it has spread like the bubonic plague across the state with officials at DHHS looking on the matter as a way to further distance themselves from the mess they created when the NC State Legislature passed a NC Mental Health Reform law in 2000.

So, how does all of this relate to the Medicaid Waiver, which has been hoisted onto the LME-MCO's, the old community mental health centers, and is now moving step-wise across the state. Bear in mind that the purpose of the Medicaid Waiver, which was FEDERALLY allowed (we are talking about FEDERAL TAX DOLLARS HERE----not private insurance all the while the proposal is about a hostile take-over of FEDERALLY MANAGED ENTITIES) is to allow the LME-MCO''s to more efficiently manage their capped Medicaid $$.

Anything BUT efficiency iis what has taken place over the past year. Please refer to my multiple interactions with Smoky Mountain Center LME-MCO and Western Highlands Network LME-MCO over the past six months at my blog, http://madame-defarge.blogspot.com/, the purpose of which is to document the profound difficulties of working with these organizations. They have little accountability, are poorly organized.

The independent Mercer Reports have re-emphasized this time again and they are not even looking at any comments or feedback from providers or impacted citizens with mental health challenges. The Mercer Report is simply going into the LME-MCO and saying, 'show us what you've got.' What kind of report is that? Do they not understand that the LME-MCO will be putting its very best foot forward under such perusal?

Providers, you know, the ones who actually do the work of helping people who are suicidal and homicidal, have absolutely no representation anywhere at any table regarding even basic matters like the re-credentialinng process of providers who are already credentialed and licensed and have been seeing Medicaid clients FOR DECADES. And so, providers have done what any underrepresented group would do: OPT OUT. GONE. Refusing to take Medicaid. Sat down at the front of the bus, if you're like me: refusing to give up your seat.

We're not talking about a few citizens w/o mental health coverage. We are talking about 80,000 Medicaid recipients under WHN LME; 130,000 Medicaid recipients are SMC.

For January, 2012, WHN LME-MCO presented data at its monthly board meeting that only FIVE PERCENT of those 80,000 people had received mental health services.

Assuming that this trend will continue, this means that most of the FEDERAL AND STATE MONIES is being used to pay the fat salaries of the likes of Betty Taylor and the employees at the LME-MCO's who push paper around and standardly have salaries of 50 grand/ year w/ benefits.

Is THIS how the citizens of NC wish to have their tax dollars used? Isn't it supposed to be used to provide mental health services to people in need? Don't citizens deserve providers who are well credentialed with doctoral degrees who studied years in order to become experts on human behavior?

We may not be on Wall Street, but this is very much a Wall Street fat-cat CEO demanding---and getting it-----unlimited amounts of money in order to create a world and domain that has nothing to do with what it is supposed to be doing. There's not just one elephant in this room: there's an elephant at every LME-MCO in this state now: monkey see no evil, monkey do no evil.

Will NO ONE in the NC State Legislature rebutt this bill whose intention is simply to increase the inefficiency of the LME-MCO. For inefficiency is directly related to non-accountability and the very fact that things have been allowed to get this far----WHEN WE'RE TALKING ABOUT THE USE OF FEDERAL AND STATE TAX DOLLARS-----is indeed, 'scaring me to death', just like the NC State Legislator stated.

Marsha V. Hammond, PhD, Licensed Psychologist, Asheville, NC.
NC Mental Health Reform blogspot since 2007: http://madame-defarge.blogspot.com/.
          ------
Pamela Jarrett · Appalachian State University
Letter to the Editor:
The article by Richard Craven in Monday's Journal does not do justice to the depths that the mental health bottom feeders can sink to regarding the care for mentally ill and mentally disadvantaged people in this state. It chills me to think of LMEs gaining yet even more power locally and regionally to charge up huge amounts in Medicaid and Medicare funds, but they are following the hospitals of the state who charge enormous fees for emergency or patient care, yet are not accountable to patients or families.

The person seeking help at the street level is still facing stigma, often poverty, lack of mental health education, and 19th and early 20th century treatment. I have personally been treated in a rural hospital with isolation as a salve for my depression, and have seen people put in four-point restraints for being psychotic while waiting for a hospital bed. It is impossible to find a psychiatrist or psychologist in my county (Swain) or in the neighboring counties (Jackson, Macon and Graham).

There are no longer any civil rights attorneys in the state to keep a check on whether patients are granted even their basic Constitutional rights, as the state created a state agency for them under DHHS some years ago. All the good civil rights attorneys now protect the state against lawsuits, and humbly do not answer questions the public may have about some terrible medical abuse, citing a 'conflict of interest.' One cannot even get a referral to an outside attorney who might consideryour case.
So, now the LMEs get to magically transform into entities that are impervious to local government, and who will act without oversight by the state, as the local hospitals do now. They will even have their own lawyers, who I am sure will be well paid, but out of what funds--Medicaid or Medicare?
I see only doom and gloom ahead for the mentally ill in NC. I guess it will take a few people dying before this autocracy will start being responsible to the government. It will take a few more dying before we begin to see government oversight and a responsive legal system.
Pamela Jarrett, M.A., J.D.

Parent PBH Inquiry

Pat Wiegand is the parent caregiver of two adult DD recipients, Casey and Jason, who depend upon CAP Waiver supports to keep her family together and maintain some small level of community involvement.

You may recognize their names from their May 22nd Arc video at the Coalition Rally or from the touching Family Stories video earlier this year.

Pat and her family reside in Senate District 9 and House District 18. Her children, Casey and Jason, receive services through Southeastern Regional MH/DD/SAS Services (SRMHC) LME.

Parent Perspective and PBH Inquiry

---------- Forwarded message ----------
From: Pat Wiegand
Date: Mon, Jun 18, 2012 at 2:22 PM
Subject: Re: re- PBH Inquiry
To: Rachel Porter

Dear Ms. Porter,

I am interested in the salaries of all PBH executives. I feel as the families of the IDD consumers we have a right to know how much of the funding is taken from them to pay high salaries. We as a group would also like to know how PBH is paying 14 million dollars for a building that to the best of our knowledge is for paper pushers. We don't believe there are any services in the building benefitting clients if this is not accurate information I will be glad to pass along any corrections you may have.

Thankyou,

Ms. Patricia Wiegand

ps I would appreciate a response before the DWAC meeting wednesday


On Mon, Jun 18, 2012 at 1:57 PM,
Rachel Porter wrote:
> Dear Ms. Wiegand,
>
> I am responding to your inquiry regarding Pam Shipman’s salary. Ms. Shipman
> has held the position of CEO at PBH since July, 2011. Her salary is $160,000
> annually.
>
> Please let me know if I can help further.
>
>
> Best regards,
>
> Rachel Porter
>
>
> M. Rachel Porter
> Director of Communications
> 4855 Milestone Avenue
> Kannapolis, NC 28081
> www.pbhsolutions.org
> 704.939.7705
>
> CONFIDENTIALITY: This e-mail (including any attachments) may contain
> confidential, proprietary and privileged information, and unauthorized
> disclosure or use is prohibited. If you receive this e-mail in error, please
> notify the sender and delete this e-mail from your system.

------ Pat's original email, sent 6/13 ------

To Whom it may concern

I am writting this request to find out if and where the salaries for executive officers of PBH can be found . It is our understanding that as a goverment funded company it should be made available to the public.
I look forward to hearing from you as soon as possible as we have meetings where I would like to present the needed information.

Respectfully,

Patricia Wiegand

14 June 2012

Medicaid Reforms May Leave Developmentally Disabled in the Cold

Notehighlights, links, italicized quotes as well as comments in *purple are entirely my own mark-up and not reflective of the author nor original posting, link below. 


--For more information in a detailed outline with supporting documents regarding critical issues facing NC's DD populations and families, CLICK HERE


This is why we MUST PAUSE!

Medicaid Reforms May Leave Developmentally Disabled in the Cold

Unintended consequence of 2011 law to improve treatment of mentally ill

By Barry Smith
Jun. 11th, 2012

[ Original article from Carolina Journal Online ]

RALEIGH — Developmentally disabled North Carolinians could slip through the cracks as mental health services across the state transition into a new health care delivery system.

Advocates for developmentally disabled patients fear that thousands of patients might lose case management services as local and regional mental health organizations (often called local management entities, or LMEs) begin implementing a managed care system of health care delivery. Time is running out for lawmakers to make the statutory changes if they want to fix the problem before the transition is complete the first of the year.

People with developmental disabilities include people with autism, cerebral palsy, Spina bifida, Down’s syndrome, and intellectual disabilities.

A law that passed last year changes the delivery of patient care to Medicaid recipients of mental health, developmental disability, and substance abuse services. The effort seeks to expand a service-delivery model employed by Piedmont Behavioral Health Services, headquartered in Cabarrus County, statewide.

Lawmakers hope the change, when complete, will result in increased efficiencies for the Medicaid-related services.

The primary emphasis of the new law was to improve services for the mentally ill. But in what may have been an unintended consequence of the legislature’s actions, advocates for the developmentally disabled worry that the patients and families they serve may have been overlooked.

Julia Adams, assistant director of government relations for The Arc of North Carolina, said that case management is key to making sure developmentally disabled patients and their families get the health care and support services that they need.

Case managers are “experts in understanding the needs of this specific community and how to best help this community,” Adams said, noting that a lot of people with developmental disabilities often have difficulty figuring out the complexities of their care on their own.

Adams said that approximately 6,000 such patients could slip through the cracks.

While a handful of area mental health organizations already have made the move to the new managed care model, most have not. However, state law requires all of them to shift to the new model by Jan. 1, 2013.

*Whoa Nelly! WE ARE NOT READY.

Patients and family members already are reporting problems they’ve encountered from the changeover in some parts of the state.

Jane Lindsey, whose 21-year-old child suffers from a number of disorders, has encountered problems getting a psychiatrist for her child.

Lindsey’s family took guardianship of their child when she was 4 months old.
“She was a shaken baby,” Lindsey said. The adult child sees about 12 different specialists. “She has three immune disorders,” Lindsey said. “At times, she can have a list of 40-plus medications.”

Lindsey, who lives in Hendersonville, said that on Feb. 14, when her child was headed home from a doctor visit, she experienced a panic attack. Despite having numerous meetings with and calls to area officials, Lindsey has been unable to get a psychiatrist to see her child for clinical intervention.


Procedures stipulate that the managed care entity must authorize such services before they are delivered.

“According to her neurologist, if she continues to have these panic attacks, she will die,” Lindsey said.

Targeted management had been provided by for-profit and nonprofit private organizations. Those businesses will close down, Adams said. She said 150 people within the Arc of North Carolina will no longer work for the private sector.

*Small agency owners and providers - some of the best, most honorable, passionate professionals in the field - are being set up for failure! 

Jim Jarrard, deputy director of the state Division of Mental Health, Developmental Disabilities, and Substance Abuse Services, said that responsibilities of former case management workers will be divided among care coordinators and community guides.


*Care Coordinators will be accessible via central call center (unless there has been a recent change?) while the minimum qualifications for Community Guides include: 18 years of age, high school diploma, and valid NCDL.

While the new coordinators and guides won’t be as “robust” as the former case managers, Jarrard said that “they certainly help you navigate the system.”

Jarrard said he understands the concerns that have been raised about case management. “We’re trying as hard as we can to try to allay fears,” Jarrard said. “I think change is always hard for people.”

*Mr. Jarrad: We are NOT afraid of change; our lives ARE change... this is not our first rodeo. --We are afraid of losing wonderful staff who are payed nothing for the jobs they do; of losing the invaluable support of case managers we've built trusting relationships with; of having to quit our jobs to fill in gaps that shouldn't be there; of not being able to care for the children we love AND survive; of having to surrender our children to salvage the rest of our family members... 


And we're afraid no one is listening  - and too little too late is just too much to risk our lives for.

Adams counters that fear of change isn’t the problem. “People are actually getting into crisis because the system is not functioning,” Adams said.

Adams said she is working with lawmakers in an effort to make sure developmentally disabled patients get the treatment plans and service referrals they need.

Two legislators — Sen. Ralph Hise, R-Mitchell, and Tom Murry, R-Wake — said they are working on legislation to resolve the problem.

“We know what we want to do,” Murry said. “We’re just trying to see if we can get it done in the time remaining.”

“We’re in the drafting process,” Hise said. But he noted that Senate committees are shutting down and legislative leaders have set a June 19 target date for adjournment.

Adams said the changes need to be made this session, and if legislators believe it’s a priority, it can be accomplished.

“I think they need a green light from the leadership,” Adams said.

If they wait until the 2013 session, which would start in late January, case management services would have already ceased, she said.


*Why are we in such a hurry to race this through haphazardly? Shouldn't we want to make absolutely, positively certain that this is done RIGHT? That no one falls through the cracks? That no one ends up with egg on their face and the State is not opening itself up to more federal lawsuits and yet another DOJ investigation? 


“By the time the fix comes, there may be nobody left to work with these people,” Adams said.

*What if this were your child? Would you leave these issues hanging 'til next session?

Barry Smith is an associate editor of Carolina Journal.

11 May 2012

Parent Legislative Correspondence from Colleen

Colleen is the parent a 12-year-old son and CAP recipient with multiple diagnosis and special needs including an auto immune disease and Traumatic Brain Injury (TBI) attributing to many medical, developmental and behavioral issues. She also has another child with needs who is not being served.


Colleen is in NC House District 36, Senate District 17 and will fall under Alliance Behavioral Health Care LME (formerly the Durham Center) upon implementation.

Legislative Correspondence

from another Parent Perspective

From: COLLEEN
Fri, May 11, 2012 at 2:08 PM
To: Govornor Beverly Perdue <governor.office@nc.gov>,
Commissioner Sharon Lewis <sharon.lewis@acf.hhs.gov> ,
Deputy Commissioner Jamie Kendall <jamie.kendall@acf.hhs.gov>,
Deputy Administrator Cynthia Mann <cynthia.mann@cms.hhs.gov>,
Connie Martin <connie.martin@cms.hhs.gov>,
House Speaker Thom Tillis <thom.tillis@ncleg.net>,
Representative Paul Stam [paul.stam@ncleg.net],
Representative Justin P. Burr <Justin.Burr@ncleg.net>,
Representative William A. Current, Sr. <Bill.Current@ncleg.net>,
Senator Fletcher Hartsell <fletcher.hartsell@ncleg.net>,
Senator Tommy Tucker <tommy.tucker@ncleg.net>

Governor, Heads of DD Departments, Committee Members, House Speaker, Legislative Members:

I respectfully submit to you to look into this issue and seek to get real numbers on the "success" of this Pilot Program with a look into the various lawsuits connected to PBH regarding the change to Innovations Waiver 916 and the misuse, arrogant "above the law" responses to the lawsuit, even being held in "contempt of court" at one point! Some revealing excerpts from BlueCross below:
"However, Medicaid appeals from adverse actions made by PBH account for more than 50% of our cases. More important is the fact that PBH does not choose to meaningfully participate in OAH-sponsored mediation, thus requiring every appeal to proceed to hearing".

"It is our experience that PBH has adopted an interpretation of federal Medicaid regulations that deprive recipients of any right to maintenance of services pending appeal. This interpretation saved PBH money and also served to pressure recipients to accept a lower level of services."

North Carolina Constituents don't want it and they will be VOTING in November!  This is not fiscal responsibility - it is smoke and mirrors appearing to make it seem like a cost savings. I entrust you to get to the truth of this matter as elected representatives for NC's most innocent members of our society and their families. 

From: COLLEEN 
Fri, May 11, 2012 at 12:12 PM
To: "Patricia Porter (Mental Health)" <Patricia.Porter@ncleg.net>
Cc: "Rep. Nelson Dollar" <Nelson.Dollar@ncleg.net>, 

"Candace Slate (Rep. Dollar)" <dollarla@ncleg.net>

Mrs. Porter,

I do appreciate your response and the time it took to formulate it.  However, I advocate heavily for my child and this Population and I have educated myself on the very issues you speak to regarding the current transition.

My "anxiety" is over a failed PBH model that the State continues to press forward with (there are currently lawsuits pending due to concerns I sited in my previous e-mail to you, which demonstrate it's failure see.... http://www.salisburypost.com/News/041112-PBH-court-ruling-qcd).  So I'm not sure how the determination was made regarding the "quality, access and consumer satisfaction"!  I would like to know where I can publicly view this plethora of "data" you refer to as it should be made part of public record from these "internal and external sources" to support the forward movement with this Innovations Waiver, as my tax dollars are paying the salaries of those who are supporting it's forward motion and should be considered when voting next election.

Cost effectiveness regarding Targeted Case Management that is currently executed by a single person, will now be replaced by two people (a Community Guide and Care Coordinator and really a third, if you consider the extra workload to QP's to write short term goals). While Advocacy isn't the right word for what a Case Manager does - it is more mediative. They know the rules concerning the CAP Waiver Program and they have direct contact with the Recipient and their families.  They are able to balance the needs with the rules, without being directly employed by the State creating more objectivity and fairness in their assessments.  Their financial incentives are not driven by the cost savings. My concern is not with the "delivery" of services but rather with the MCO being the same entity to decide how much services your child gets while at the same time, having financial incentive to decrease those same services!  Currently, you have a middle person who sees both sides and helps mediates what is fair - I see this elimination and replacement with MCO as a tremendous conflict of interest!  Concerning the Community Guides - many of the TCM's will not even take these jobs as the educational requirements are only high school diploma which directly affects the pay scale (and reimbursement rates).  So the "transitioning to Community Guides" is not happening as you suggest. Meanwhile, new MCO employees are making tremendous salaries and building new facilities to house themselves as well as taking employees from local Agencies delivering services because they can't compete with the offers being made to these new MCO employees. That doesn't sound like fiscal responsibility to me.

After the initial Alliance meeting this week, there were more questions that were answered with "we aren't sure at this time" or "that hasn't been decided yet" or "we don't know" then there were actual solutions and thought out consequences to changes.  It appeared to those in attendance, that many details have not been well thought out and the consequences for that failure to communicate with both the Recipient Families and the Agencies Serving them (which is who the DHHS/Legislature should be gathering their information from concerning what works and what the needs are), is going to be on the backs of the families who struggle already.

There are no current answers being communicated to families, concerning whether a child will continue to have habilitative services and enhanced personal care for those with intense personal/self help, daily living needs. Enhanced Personal Care or it's equivalent is imperative to families with intense personal care needs. I have previously addressed this when the last version of the CAP Waiver was attempting to remove it then. There are serious consequences to families without that distinction between PC and EPC.

The new SNAP "replacement" called SIS that is being done by the MCO appointed "MD or Psychologist" for families is "clinical" in nature - this is not person centered at all, hinging service level determinations on inadequate information at best.  While I do agree that there are instances where families are over served and under served (I waited 6 years to receive CAP) - I think the best way to curtail some of that is to go directly to both the TCM's and Agencies that service Recipients!  They know who is taking advantage of the system - document and act accordingly to abuses found.  Families like mine who have ambitious home programs that they work very hard at to habilitate their child and give them the most skills possible and best shot at quality of life, should not be penalized by these families not doing their part.  Trying to come up with some sort of "obamanomics" for equal distribution of services is neither fair or helpful and will dramatically increase your costs in institutionalization of children as families succumb to the pressures without adequate supports. There are factors beyond what is seen that should be considered in the mix for service level determinations.  For instance, we have a second child with special needs that doesn't have CAP but requires tremendous effort to assist daily. Those factors should be considered as well, when determining services.  There are families I know that have cancer or other debilitating illnesses and they rely on CAP to allow their child to remain home, without the proper levels of care, they would succumb to institutionalization and that will DEFINITELY increase the States Costs and are very real unintended consequences to these changes.

Respectfully,

Colleen


On May 3, 2012, at 6:52 PM, Patricia Porter (Mental Health) wrote:

Hello Ms. [last name redacted],
 
Representative Dollar has asked that I respond to your message to him regarding the CAP Waiver Program. 

I understand the your son receives services currently funded through the CAP-MR/DD Medicaid Waiver and you are pleased with those services as well as the agency providing your case management. You have concerns that as the state transitions to the Innovations Waiver that will be operated under the Medicaid B-C Managed Care waiver that his services may be in jeopardy. In addition you believe that the model may increase costs  and that there may be a problem with the same agency providing service as is authorizing those services.

First let me say that I understand the anxiety that comes with this kind of transition.  Many families who have children with disabilities have struggled long and hard to get the services their children need provided by people they trust.  There is no doubt, however, that the MH-DD-SA system that we have had for the past 11 years could not continue to operate as it has.

Long waiting lists, unqualified and unreliable providers, no fair or equitable way to allocate resources and precious service money wasted just could not be sustained, especially in this fiscal environment.  The General Assembly in partnership with the state agency determined that we must convert to an operation that is efficient, with highest quality service providers and with services provided according to the actual needs and preferences of the individual and his/her family.  While it sounds like your services were just right for your child, there are many thousands of people who went underserved or unserved in our state while some received services that could not be justified by their need.   Because we have not had an increase in CAP slots for the past 4 years, many families received Case Management and nothing else… literally having someone call them up periodically to see how they are doing but to report that there was no money to pay for the actual services they needed.  Those families reported that they would gladly forgo the monthly calls in order to have the money supporting those calls go to actual services.
 
The state was fortunate to have a model of managed care unlike any other in the country in PBH.  This pilot project has operated successfully for 7 years on behalf of MH-DD and Services. There were plenty of data available on costs, quality, access, consumer satisfaction both from internal and external sources and the decision to move to this model that was actually made by the state some 4 years ago was actually implemented this year.  The model will be expanded statewide.  The General Assembly wanted to maintain our system as a governmental operation with all of the control and oversight that implies rather than moving to full privatization and handing the MH-DD-SA system to a for-profit private company.  This was particularly important for service management for people with intellectual and other developmental disabilities.
 
You expressed concern that the same agency providing services is the same agency authorizing those services.  The LMEs will not be providing services at all, they will be contracting with the same agencies that are currently delivering services if those agencies meet the quality standards.  They will be authorizing services using a standardized, equitable approach that will address the needs of each individual.  Targeted Case Management, which in the past included assessment, service plan development, referral to services and monitoring of those services is no longer allowed by Medicaid. Rather, the LMEs will provide care coordination to cover all of these activities. You will notice that advocacy and community navigation is not included in the service definition for Targeted Case Management. This was viewed as so valuable by consumers and families that a new service will be offered called “Community Guide” and will be available to all families who wish to have it.  Many agencies that once provided Targeted Case Management have transitioned to providing Community Guide Services as well as a number of other DD services. Services are contracted by the LME and provided by the private sector.
 
Data review demonstrates that Targeted Case Management did not reduce costs and to my knowledge, this model of managed care has not been operated anywhere else and costs were  not increased in our own in-state experience. The General Assembly wisely made sure that there are special provisions in state law to protect the interests of people with DD and their families within this new system.  The new system comes with clear expectations, continuous monitoring and review, safeguards to assure cost controls and, most importantly, quality and consumer satisfaction. Surely there will be some costs as the LMEs consolidate and take on a new operational models with new employees needed with specific skills.  This was planned for and expected and the new model will still result in significant administrative cost savings. These cost savings will not be at the expense of service quality or access. The essential goal, and one that will be closely monitored is that those individuals who are eligible for services receive the services they need, no more and no less.
 
The state has made the decision to move to statewide expansion of the B-C Managed Care Waiver.  Be assured that the General Assembly remains vigilant to assure that the high goals planned for this system are achieved. Your perception is very valuable and your input always welcomed.
 
I hope this information is useful to you.  Please let me know if I can help further.
 
Patricia Porter, PhD, Consultant
Health and Human Services
North Carolina General Assembly
301-B Legislative Office Building
300 N. Salisbury Street
Raleigh, NC 27603
(919)301-1982

From: COLLEEN
Sent: Tuesday, May 01, 2012 08:22 AM
To: Rep. Nelson Dollar
Subject: Medicaid CAP Waiver Program

Representative Dollar:

As a constituent and parent of a CAP Waiver child with developmental disabilities, I have some grave concerns regarding the direction that the NC Legislature is being guided to "more cost effectively" deliver services to recipients like my son, via a Managed Care model.  This has been done in the past with unsatisfactory and increased cost results.  It is also a very questionable idea to have the same entity that is providing services be the one writing CNR's to "advocate" FOR those same services, when there is an obvious financial incentive to keep costs low and deny or reduce those same services to the very recipient they are "advocating" for!  I see a huge conflict of interest in this model with the discontinuation of Targeted Case Management, specifically.  There is a proven model of privatization and healthy competition that results in superior delivery of services and reduced cost.  This looks like "big government" to me and upon further research, I am disgusted to see the amount of money that is being spent to "transition" to this previously failed model and know of employees that have left case management type positions to make significantly more money working for the MCO.  This is not "cost effective" and seems like a recipe for corruption and greed.  I'm also aware of several lawsuits pending in other Counties where this very thing I am concerned about, is happening to families!

I would like to know what you are doing to advocate for your constituents that are dealing with children that have developmental disabilities such as mine, to ensure this is not going to be a disaster for our family.  Specifically, I would like to see you advocate against this change to the new Waiver, especially, regarding the loss of targeted case management - our main advocate and mediator between the State and Families.  My votes will be going toward the legislative representatives that are most closely representing the needs of our families.  We have enormous struggles on a daily basis and don't need the added stress of law makers who don't understand these struggles and make laws or changes, that increase those burdens and decrease our supports.

I have been extremely blessed by the current Waiver we are under and the advocacy skills of my current Case Manager and the delivery services of my Agency - A Small Miracle Inc..  These services are vital to my families ability to not only function with our other children, but also for my son to make significant progress and have quality of life.

Respectfully,

Colleen

28 April 2012

PBH Documents

 Piedmont Behavioral Health (PBH) documents.