As we all should, I prefer to be an educated voter and have a good understanding of not only the issues at hand, but the political positions on those issues that matter most. So I'm following lots of folks these days and Twitter, as annoying as it is, comes in handy.
As a parent of a child with profound Developmental Disabilities and Medicaid / CAP recipient, it goes without saying that I am very interested in candidate positions on DD / Medicaid / DHHS matters that will impact Isabel, our family & lots of special peeps across the state - as I'm sure most special parents, providers, and direct-care-staff staff are.
If you Tweet, feel free to follow me as that'll pretty much be my focus 'til the end of this thing - with maybe an occasional coffee picture thrown in, only because to my knowledge caffeine does not come in an IV drip yet.
*Please note: re-Tweets and Follows are not necessarily endorsements, but they could be?
Email to Pat McCrory,
Candidate for NC Lt. Governor
Pat McCrory (@PatMcCroryNC) has sent you a direct message on Twitter!
Crystal J. De la Cruz Tue, May 22, 2012 at 2:06 AM
To: info@patmccrory.com, media@patmccrory.com, volunteer@patmccrory.com, rdiaz@patmccrory.com
Dear Mr. McCrory,
I, along with many parents and family members across the State, would eagerly welcome a dialogue and are very interested in your position regarding the new state-wide Medicaid 1915(b)(c) Waiver reform and the vital impact the service cuts will have on Developmentally Disabled citizens and families.
Many of the members of the North Carolina General Assembly who sincerely wish to assure that the welling wellbeing of our most fragile of populations receive the proper supports and protections, despite their best efforts, are not receiving the most complete information from all stakeholders necessary to make the best possible decisions for all involved. True, it is not an easy system to understand, even for those who live and work in it. --All the more reason that after so many proven failures, we slow this train down, get it right, and make certain that we arrive at the destination intended. --All the more reason that those who will be most affected by these decisions and changes - the innocent and vulnerable developmentally disabled children and their overwhelmed and exhausted families - have a voice and that voice be heard.
Currently, our voice is NOT being heard.
Currently, there are no appropriate appeal procedures in place for families regarding the care of their special loved ones and the hope of fail-safe due process protections are in dire jeopardy.
For your review, I have attached the letter and enclosures previously sent to Governor Beverly Perdue and members of the General Assembly earlier this year. To the best I can confirm, it was never personally read by our Governor. From the 170 members of the House and Senate, I received 5 responses to my initial mail.
I look forward to hearing more on your position and invite you to please contact me at any time.
Thank you in advance for your time an attention on behalf of my daughter, Isabel, my family, and the thousands of special populations across the State of North Carolina and the families who love them.
Sincere regards,
--
Crystal J. De la Cruz - Hopper
Mother, Advocate & Concerned Citizen
[Phone] Office
When we allow the value of human life to be determined by capital gain, when we sacrifice the well-being of the most innocent among us to compensate our own shortcomings, and when we judge the worth of our most fragile, not by their character nor intention, but rather their abilities – We Are in Crisis.
http://no2nchb916.blogspot.com/
"The moral test of government is how it treats those who are in the dawn of life . . . the children; those who are in the twilight of life . . . the elderly; and those who are in the shadow of life . . . the sick . . . the needy . . . and the disabled."
--Hubert H. Humphrey
---------- Forwarded message ----------
From: Twitter
Date: Tue, May 22, 2012 at 12:36 AM
Subject: Pat McCrory (@PatMcCroryNC) has sent you a direct message on Twitter!
To: Crystal J. De la Cruz
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