FW: National Core Indicators Adult Consumer Survey

Below is an email I received regarding the National Core Indicators (NCI) surveys and reports conducted as a collaborative effort between the National Association of State Directors of Developmental Disabilities Services (NASDDDS) and the Human Services Research Institute (HSRI) as pertaining to the Durham Center LME (now Alliance Behvioral Health Care).

From the NCI website: 

The purpose of the program, which began in 1997, is to support NASDDDS member agencies to gather a standard set of performance and outcome measures that can be used to track their own performance over time, to compare results across states, and to establish national benchmarks.

• NCI State Report for North Carolina, 2009-10 data
• For comparison, you may view reports from the other 29 participating states here
• NCI Adult Consumer Survey Outcomes, North Carolina Durham LME Report, 2009-10 data

Currently, my daughter is 14 years old and personally I have never received a survey of any kind from any state nor federal agency regarding services she has received over the years that I can recall, nor have I ever been asked for my opinion nor feedback, though I'm certain it's no surprise to anyone who knows me that I happily provide it anyway. 

But apparently some folks are asked for input on their experiences. 

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Subject: FW: National Core Indicators Adult Consumer Survey

DMHDDSAS conducts National Core Indicators surveys of people with intellectual / developmental disabilities (IDD) through the Division's Core Indicators Projects annually. The surveys consist of (1) family surveys that are mailed to the family members or guardians of random samples of people with IDD who received a service other than case management or care coordination in the past fiscal year and (2) the adult consumer survey. The latter consists of two parts: (a) the background information section that is completed by a service provider, and (b) the adult consumer section that is completed through a direct interview of the person with IDD for the first part of the section and a direct interview either with the person with IDD or with others (e.g. a family member or an advocate, or a service provider).

Attached is your advanced copy of a report about the performance of your LME/MCO on the national core indicators (NCI) that was produced by the Human Services Research Institute (HSRI) based on the adult consumer surveys conducted in SFY 2009-2010. HSRI is a non-profit agency that works with states on measures that impact people with Intellectual and Developmental Disabilities (IDD).

HSRI analyzes NCI data and publishes reports that show how each state performs against other participating states. The final report for 2009-2010 for the state of North Carolina may be accessed at the following HSRI website: http://www.hsri.org/files/uploads/publications/NCI_CS_09-10_FINAL_Report.pdf. DMHDDSAS will be publishing LME-specific reports on its own website on or before the end of this month.

We believe that the findings generated from the NCI surveys are extremely valuable for improving the system at the state and local levels and we hope that you will share them with your stakeholders, including members of your Community and Family Advisory Committee (CFAC).

If you have questions about the report or the project, please do not hesitate to get in touch with Maria Fernandez (919-733-0696; maria.fernandez@dhhs.nc.gov).

DRNC : Request for Public Input

Survey from Disability rights NC regarding target / focus areas in the new fiscal year.

Disability Rights North Carolina is our State's protection and advocacy system for its citizens with disabilities. We provide individual and systems advocacy, including legal representation, to people with disabilities when their legal rights are violated. We uphold the provisions of the Americans with Disabilities Act and other federal and state laws.

Each year, we establish Targets that guide how we spend our resources for the coming year. These Targets drive the work that we do. They influence the work we do and the cases we take.

In fiscal year 2011 (October 1, 2010 - September 30, 2011), we received more than 2,300 calls for assistance but had the resources to provide direct advocacy for only 852 callers.

On June 15, 2012, the Board of Directors of Disability Rights NC tentatively approved its Targets for 2013 which are now out for public comment through the middle of August. The Board will carefully consider all public input received before finalizing the 2013 Targets at its September Board meeting. We do this to make sure that we are spending our resources the way the disability community feels is important.

Our proposed 2013 Targets continue to focus on the impact of the state budget cuts to services for people with disabilities. They also reflect the requirements of our federal funders.

Please let us know what you think about the proposed 2013 Targets by responding to this survey. It should take about 15 minutes but that time will help us make better decisions about how to spend our limited resources next year.

Please share the link to this survey with your friends, family and anyone who cares about people with disabilities.

If you need assistance in completing this survey, contact Haydee Martinez at 919-856-2195.

Si necesitas ayuda o traducción en español para completar esta encuesta por favor llame a Haydee Martinez al 1-877-235-4210 or 919-856-2195 or haydee.martinez@disabilityrightsnc.org.