24 May 2012

Parent Legislative Correpondence

Colleen is the parent a 12-year-old son and CAP recipient with multiple diagnosis and special needs including an auto immune disease and Traumatic Brain Injury (TBI) attributing to many medical, developmental and behavioral issues. She also has another child with needs who is not being served. Posted with parent permission.


Colleen is in NC House District 36, Senate District 17 and will fall under Alliance Behavioral Health Care LME (formerly the Durham Center) upon implementation.

Legislative Correspondence
from another Parent Perspective


From: COLLEEN
Date: May 22, 2012 4:03:40 PM EDT
To: "Rep. Nelson Dollar" <nelson.dollar@ncleg.net>
Cc:  [omitted]
Subject: Thank You

Representative Dollar:

Today I visited your office with my old Case Manager, my QP, my current CAP worker of 2 years and we discussed the current Waiver 916 that is slated to go into effect in January. I appreciate the secretary listening very intently to our concerns, which are the collective concerns of this population and their families. 

I understand the need for fiscal responsibility and we care deeply about the direction our government has taken on spending, considering that my husband is one of the few 49% of taxpayers in America today. However, we both also deeply feel this is the wrong way to achieve fiscal responsibility, on the backs of some of our most voiceless, innocent and already struggling children and their families. This current Waiver proposal needs much deeper investigation by Legislative Members such as yourself, as there are very obvious problems and conflicts of interest with this current proposal. I urge you to restore INDEPENDENT CASE MANAGEMENT for the DD community. I also urge you to CREATE CHECKS AND BALANCES outside the MCO that compel them to be accountable to provide services as needed and to allow for a 3rd party binding conflict resolution entity. 

Thank you again for your time. I will be watching closely to see what various legislators do with this urgent need.

Blessings,

Colleen
 *As special parents, our perspectives, interests, and priorities in various issues surrounding NC's new 1915(b)(c) Innovations Waivers and the changes they bring to our families differ according to the unique needs of each of our children.

If you have something to share, email: no2nchb916@gmail.com